Hi everyone, i'm New on this forum, i hope maybe i can get some insight on my situation.
I'm a 37 yo male, here is my tale:
My life changed completely 5 months ago,
this January, I was at work and experienced a migraine with aura for 30 min, ( bright colored zig zags on both eyes slowly fading to the sides).
I never had a migraine before and never had one similar since that episode.
The next day, I started to experience the same symptoms as when I had a concussion 15 years ago.
In 3 days, it's like a veil came onto me progressively, very strong noise intolerance (it actually hurts), light intolerance, constant light headedness, balance issues and persistant fatigue.
I have very Light sleep, insomnia, unrefreshing sleep, and the brain fog hits every morning as if i was intoxicated, that for me is thé worst.
I have a mental processing slowdown, forgetting words and slurred speech, and constant attention deficit, even simple tasks or conversations are very exhausting mentally.
I have trouble focusing between far and close objects, also experiencing a kind of constant mild double vision as if my eyes aren't "synced", same for tracking and reading text.
Rapid Movement on TV or screen makes me dizzy as well as subtitles.
Staying in bed lessens the symptoms, as well as nighttime ( for some reason the brain fog is less present in the evening /night).
For a few days, I thought these symptoms were because of the Migraine since I never had one, but a month later nothing had changed so I decided to go see a neurologist.
I did psycho motor and neuropsy evaluations, both were below the norm for my age, but EEG and MRI didn't show anything.
The neurologist then concluded it could be due to stress or anxiety.
I had to stop working and playing sport as it's impossible for me in this state to perform any brain demanding activity.
It's now 4 months later, and all symptoms are still there, I'm resting all day long, I'm not anxious, but feel frustrated because it's like my life has been taken from me!
I dont have muscle or joint pain, as for PEM, its hard to explain but for sure walking Just one mile Will drain my brain to the point of fainting and exacerbate the fog/tunnel vision.
I feel weak and need to lay often(in bed 20h/day), but i dont sleep i just rest, by that i mean i dont fit the sleeping profile i often read about Me ( People sleeping all Day long).
I Wonder what you think about my case, my primary symptom being that awful brain fog, and constant lack of brain/cerebral stamina.
The medical sector in my country is far from progressive and they tend to refer you to a psichiatrist as soon as you dont fit in their boxes.
My neurologist dont even think Me/FM is real...
Thank you kindly for your help, appreciated !
Slapstick
I'm a 37 yo male, here is my tale:
My life changed completely 5 months ago,
this January, I was at work and experienced a migraine with aura for 30 min, ( bright colored zig zags on both eyes slowly fading to the sides).
I never had a migraine before and never had one similar since that episode.
The next day, I started to experience the same symptoms as when I had a concussion 15 years ago.
In 3 days, it's like a veil came onto me progressively, very strong noise intolerance (it actually hurts), light intolerance, constant light headedness, balance issues and persistant fatigue.
I have very Light sleep, insomnia, unrefreshing sleep, and the brain fog hits every morning as if i was intoxicated, that for me is thé worst.
I have a mental processing slowdown, forgetting words and slurred speech, and constant attention deficit, even simple tasks or conversations are very exhausting mentally.
I have trouble focusing between far and close objects, also experiencing a kind of constant mild double vision as if my eyes aren't "synced", same for tracking and reading text.
Rapid Movement on TV or screen makes me dizzy as well as subtitles.
Staying in bed lessens the symptoms, as well as nighttime ( for some reason the brain fog is less present in the evening /night).
For a few days, I thought these symptoms were because of the Migraine since I never had one, but a month later nothing had changed so I decided to go see a neurologist.
I did psycho motor and neuropsy evaluations, both were below the norm for my age, but EEG and MRI didn't show anything.
The neurologist then concluded it could be due to stress or anxiety.
I had to stop working and playing sport as it's impossible for me in this state to perform any brain demanding activity.
It's now 4 months later, and all symptoms are still there, I'm resting all day long, I'm not anxious, but feel frustrated because it's like my life has been taken from me!
I dont have muscle or joint pain, as for PEM, its hard to explain but for sure walking Just one mile Will drain my brain to the point of fainting and exacerbate the fog/tunnel vision.
I feel weak and need to lay often(in bed 20h/day), but i dont sleep i just rest, by that i mean i dont fit the sleeping profile i often read about Me ( People sleeping all Day long).
I Wonder what you think about my case, my primary symptom being that awful brain fog, and constant lack of brain/cerebral stamina.
The medical sector in my country is far from progressive and they tend to refer you to a psichiatrist as soon as you dont fit in their boxes.
My neurologist dont even think Me/FM is real...
Thank you kindly for your help, appreciated !
Slapstick
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
