CFS/ME diagnosis after ovarian cancer

Discussion in 'Testing and Diagnosis' started by Gayle, Oct 3, 2019.

  1. Gayle

    Gayle New Member

    Hi everyone.
    I'm a new member but long term follower of Healthrising. I'm interested in information about CFS/ME diagnosis after chemo and hysterectomy with bilateral sapling/oorphorectomy due to ovarian cancer ( 2004-2005.) About a year after chemo was complete, I experienced disabling fatigue. I made the rounds of specialists for 8 months. I looked fine on paper. I began seeing Dr. Lapp and after following me for several years he diagnosed CFS/ME. I had no pain - as in fibromyalgia - and still do not. Has anyone had similar experience? Does anyone know if chemo and/or these above mentioned surgeries can cause CFS/ME?
    I stopped seeing Dr. Lapp years ago - not because I didn't like him a lot. Now I'm thinking about seeing Dr. Klimas. Anyone seen her recently? Results?
    Thank you
  2. Issie

    Issie Well-Known Member

    I didn't have cancer, but did have a complete hysterectomy at a young age. For sure things seemed to intensify after that. Not thinking you would be able to go on any type of hormone replacement? The only thing I found to help a little was estriol. But also, when I started treating mast cell issues I had a huge change and improvement for the better. (Still not well, a work in progress.)
    I so feel for you. It is so miserable having to deal with after affects of a hysterectomy, much less cancer.
    Can't answer for Dr. Kilmas, but heard good things.
  3. Gayle

    Gayle New Member

    No HRT because of strong history of breast cancer in my family. TY for sharing your experience.