sheri
Member
Hello Cort and others
I had read a month or so ago on this forum about the pyruvate and lactic acid blood test for those with CFS
After having CFS and Fibromyalgia and MCS for 30 some years I decided to ask my internist about these tests
and he said this was interesting..to him and wrote me a pres to go to the hospital lab to have them done..
I have seen this internist group for 20 years...and of course there is nothing they can do but treat pain or
symptoms ...so I never ask for anything...when I go once a year.. I just get normal blood work done...
SED rate, red blood cells test and WBC count and normal blood workup..once a year..
My SED rate is 30 top of the chart...Red blood cells irregular and low WBC count
every year...for 30 years...
The SED rate started out real low then it rose to 30 the last few years...
I called medicare and after holding the phone for one hour and just totally exhausted they said the doctors office needs to call with the prices of each test and code not you..
So my question is..are these test covered by medicare totally as all other blood work is ...when ordered by your doctor?
Has anyone had these test done and does it show how much oxygen is traveling through the body and cells
or what benefit would it be to have these two test done for a person who has CFS or myalgic encephalomyelitis?
My wanting to have them done is to show my internist that I do not get enough oxygen and have not for 30 years
with cfs...
I am breathless most of the time and just want some proof...as all heart test have been done
and nothing shows up...I can not stand still because I feel like I will pass out...but if I move fast
when walking it seems to pump blood upwards or get more oyxgen to the brain and heart area..
What time of day would be best to show the least amount of oxygen in the blood if these test show that
you do have to fast 4 hours before the blood is drawn...
I plan to go next week if the tests are covered...with medicare only no supplement with medicare..
anyones thoughts on whether these tests show anything that is going to be enlightening to the internist
or to those wanting to get diagnosed with CFS that can not get a diagnosis ?
Husband and I both have CFS, Fibromyalgia and multiple chemical sensitivity illnesses.
Thanks
Sheri
I had read a month or so ago on this forum about the pyruvate and lactic acid blood test for those with CFS
After having CFS and Fibromyalgia and MCS for 30 some years I decided to ask my internist about these tests
and he said this was interesting..to him and wrote me a pres to go to the hospital lab to have them done..
I have seen this internist group for 20 years...and of course there is nothing they can do but treat pain or
symptoms ...so I never ask for anything...when I go once a year.. I just get normal blood work done...
SED rate, red blood cells test and WBC count and normal blood workup..once a year..
My SED rate is 30 top of the chart...Red blood cells irregular and low WBC count
every year...for 30 years...
The SED rate started out real low then it rose to 30 the last few years...
I called medicare and after holding the phone for one hour and just totally exhausted they said the doctors office needs to call with the prices of each test and code not you..
So my question is..are these test covered by medicare totally as all other blood work is ...when ordered by your doctor?
Has anyone had these test done and does it show how much oxygen is traveling through the body and cells
or what benefit would it be to have these two test done for a person who has CFS or myalgic encephalomyelitis?
My wanting to have them done is to show my internist that I do not get enough oxygen and have not for 30 years
with cfs...
I am breathless most of the time and just want some proof...as all heart test have been done
and nothing shows up...I can not stand still because I feel like I will pass out...but if I move fast
when walking it seems to pump blood upwards or get more oyxgen to the brain and heart area..
What time of day would be best to show the least amount of oxygen in the blood if these test show that
you do have to fast 4 hours before the blood is drawn...
I plan to go next week if the tests are covered...with medicare only no supplement with medicare..
anyones thoughts on whether these tests show anything that is going to be enlightening to the internist
or to those wanting to get diagnosed with CFS that can not get a diagnosis ?
Husband and I both have CFS, Fibromyalgia and multiple chemical sensitivity illnesses.
Thanks
Sheri