weyland
Well-Known Member
I totally understand where you're coming from.I guess I just don't care. By the time they figure it out I'll be long gone. And even when they figure it out it'll be years before it works its way into mainstream medicine. IMO
For me, I find Ramsay's description of the disease personally important because it perfectly reflected my onset and symptoms. When you have acute onset ME, you will likely not see yourself in the CDC criteria. The terrifying symptoms you have aren't even listed there. Eventually as you work your way into the CFS world you will believe that ME is just what the rest of the world calls CFS, you won't realize that the onset and symptom patterns are totally different.
I also find the British description of the disease important because the persistent enterovirus hypothesis represents the zenith of British biomedical ME research. This is exactly what was found in me and has been the only thing that led to a course of treatment that provides symptom improvement.