I always worry about highly active folks contracting this illness, as conventional wisdom for recovery from illness has been "you just need more exercise..." Pacing is actually critical. In my 17th year, but did not start improving until after I quit my 55 hr/week management job 4 years into ME/CFS. I had a sore throat that lasted for months at a time. 3 week intervals where I was fine for 3 and down for 3. Literally could not put a sentence together one day and totally fine the next. Had problems putting one foot in front of the other during the relapses which really scared me - hence the pacing. Neuroinflammation was bad in early years. I used a cranial cap which I could put in the freezer. All these years later an Aleve will relieve the occasional neuroinflammation. I continue to look for supplements to help the Hypothalamus as I have from the beginning.
A little goes a long way with supplements for me. So I buy liquid and bulk when necessary to adjust the dosage more easily. Supplements that provide energy can keep you up all night!
Keep Vitamin D3 test levels above 50
Astralagus - I take this at start of relapse
Ashawgandha - don't take much lately but was fantastic with anxiety at one stage
L-Theanine - currently take for anxiety before I go to bed - 100 mg.
Kelp supplement of once a week or so for iodine as none in my salt
L-Tyrozine - affects thyroid balance
Cannabis products for pain
Homeopathic products like Arnica for pain
Been fighting circadium rhythm issues forever. My best time of day is 11 p.m. I now take THC/CBN gummies and Hyland's Calms Forte for getting to sleep but still average 1 a.m.
Champagne, Cava or Prosecco have been VERY helpful over the years. People laugh, but I finally figured it out: Champagne increases the availability of Nitric Oxide in the blood, a vasodilator:
From Healthline: "Numerous fruits and vegetables, like spinach, beets, radishes, arugula, and leafy greens, contain nitrate . Nitrites are created when bacteria eat nitrates in the mouth and digestive system. The subsequent conversion of nitrites produces nitric oxide, crucial for many physiological functions."
Thank you so much for your response while I am not in my 17th year what you explain is exactly what I’m going through in my second year after getting a Covid booster. It took a long time to reveal what was causing all the pain in my body, but it was finally found out that the Epstein bar virus is off the charts.
I went to functional medicine, doctor, etc. etc. and now realize I just need to learn what someone else said about keeping a log of what I’m eating so I can realize what’s reactivating the pain.
And I love your research on Prosecco! Lol