does prednisone help ME/CFS,POTS

[GrammaLinda]

Has anyone had success with prednisone for me/cfs/pots. My husband thinks it is a wonder drug. I do not. Too many side effects but he keeps insisting I ask around.

 

[jaminhealth]

I use no steroids, avoid a doc who would push them.

 

[TME]

Hi GrammaLinda,
If you haven't already, you should check out this recent article and comments, to get a variety of viewpoints on this to consider. Prednisone makes most people feel amazing, but I definitely don't think you'll find many who believe it to be safe for long-term use. However, low-dose Hydrocortisone may be another story - it's like everything else with this disease, it helps some but not others. Some think it's safe and some don't. This article will shed some light. I just posted my experience with HC there, it's the most recent comment. Good luck!

Low Dose Hydrocortisone: Flare Buster for Fibromyalgia and Chronic Fatigue Syndrome? - Health Rising

Cortisol, our body’s main stress hormone, has an amazing reach. Given the effects it has on our metabolism, inflammation, blood pressure, blood sugar, energy production and even the sleep-wake cycle, it’s no surprise that researchers early on latched onto signs of cortisol problems in chronic...

www.healthrising.org

 

[Ughhh]

I feel much better on steroids but they won't treat me with a regular low dose of steroids to see how I do. They have only given me the 5 day pacs to treat a rash and to treat migraines, but very infrequently bc even that they think is a problem. I'm on the side of your husband, but I think it depends on the person and the situation. I'm in favor of anything that makes me functional and not disabled, I think it's more important that I be able to work and have a life. What I have read about low dose daily steroids does not seem that bad or risky.

 

[jaminhealth]

Ughhh, I see your issue is FM, and there are so many ways to manage this bag of issues doctors have put people in. Thyroid dsyfunction is a big one, it was for me and doc kept pushing drugs and not thyroid help.

Steroids have such a LONG list of side effects.

 

[Creekside]

Prednisone gave me temporary remission from ME the first two times I tried it. It never worked again after that, even at double the dosage.

 

[jaminhealth]

Just talked to a friend who is a long time member of P.R. and also has dealt with ME for a long time, and no no no on steroids for this...temporary relief but very temporary and the side effects are long term.

She's working with some ginsengs now and trying some, I can't work with ginsengs as they can elevate blood pressure, she is not challenged with HBP.