Did you get help from Kaufman? Someone else?
Bless you for assisting your daughter!
I do not know the name Kaufman. I am in the central states. There is statement on him on MEpedia. I have had good and bad experiences in my long journey with the medical field. I saw a top doctor for possible pituitary issues (20 years ago) and tried to show him my 30 years of medical reports, which he ignored and I was out of there in 5 minutes...not a bit of help. I had flown from Europe to Nashville at the time.
When I finally found the "right" doctors, they were competent and educated enough to look through all my old records AND give me all the tests one needs for ME/CFS and Lyme, which I suspected.
Before that, I myself made excuses...it's just my celiac, or my hormones, or my vascular issues. None of my regular doctors picked up on the systemic symptoms of ME. If you want to "talk" private message me. Okay? Sorry your daughter is suffering.
I have been on treatment for ME since 2017. I wish you all the best! FG