sasha
Member
For those who have tried and responded well to Equilibrant / Oxymatrine, just wondering what their experience has been longer term.
I've only been using Equilibrant for about 5 weeks, but I've had a pretty quick and really dramatic reduction to brain fog / cognitive issues. Pain seems to have increased, esp in joints (but then again, my brain fog was so bad before, I prob just didn't notice it as much). Seem to have a bit more energy (but pretty low bar, since I'm mostly homebound, but I just put away already folded laundry and unpacked the dishwasher without a break, so that's exciting). I'm still trying to stick with same level of extreme pacing I've been using for the past 2 yrs, but now that my brain seems to have started working again, I think it's getting impatient with me
I've only been sick about 3-4 years, but mostly housebound for the past ~2 yrs. Tried valcyte, famvir, valtrex, namenda in the past with no response (I'll admit to somewhat feeling jealous reading about people's herxing responses to various meds). Also using some supplements (vit B shots/supplements, Kpax protocol, coq-10, neuroprotek), and I started using LDN and Equilibrium probiotic about 3 months ago. LDN seems to have had some subtle positive results. Inosine is the only thing I've tried so far and had a really bad response to.
Anyone have info on common patterns on people who have responded well either in the short run or longer term (e.g., length of sickness, bloodwork, other meds they did/didn't respond to, etc.)? I'm trying to keep my expectations realistic. But now that I've gotten a taste of life again without unrelenting, squinting to try to understand anything-type brain fog, it's hard not to feel a little hopeful.
I've only been using Equilibrant for about 5 weeks, but I've had a pretty quick and really dramatic reduction to brain fog / cognitive issues. Pain seems to have increased, esp in joints (but then again, my brain fog was so bad before, I prob just didn't notice it as much). Seem to have a bit more energy (but pretty low bar, since I'm mostly homebound, but I just put away already folded laundry and unpacked the dishwasher without a break, so that's exciting). I'm still trying to stick with same level of extreme pacing I've been using for the past 2 yrs, but now that my brain seems to have started working again, I think it's getting impatient with me
I've only been sick about 3-4 years, but mostly housebound for the past ~2 yrs. Tried valcyte, famvir, valtrex, namenda in the past with no response (I'll admit to somewhat feeling jealous reading about people's herxing responses to various meds). Also using some supplements (vit B shots/supplements, Kpax protocol, coq-10, neuroprotek), and I started using LDN and Equilibrium probiotic about 3 months ago. LDN seems to have had some subtle positive results. Inosine is the only thing I've tried so far and had a really bad response to.
Anyone have info on common patterns on people who have responded well either in the short run or longer term (e.g., length of sickness, bloodwork, other meds they did/didn't respond to, etc.)? I'm trying to keep my expectations realistic. But now that I've gotten a taste of life again without unrelenting, squinting to try to understand anything-type brain fog, it's hard not to feel a little hopeful.