@Beth from Oz
Thank you for posting the abstract. Yes, I was diagnosed with Tarlov cysts by a neurosurgeon, as well as dilated upper thoracic nerve roots. The Tarlov cysts are often missed because sacral MRIs are rarely ordered. Plus, it may take a neuroradiologist to evaluate the sometimes subtle changes which indicate dilated spinal nerve roots.
Again, until researchers appreciate how the central nervous system functions and how spinal fluid circulates between the brain and sacrum, many ( most? ) of us will remain a mysterious conundrum of symptoms.
But having said that, I have appreciated this particular problem for many years and could find anyone who can solve the problem to the point where I have decent function. I have tried everything, and some of the very fine physical therapists, John Barnes myofascial release, craniosacral, sacro-occipital, etc etc. But my sacrum and neck are still unstable. Think this is happening because of off midline fusion of the filum terminale in the sacrum - related to scoliosis ??
Neurosurgeons Tubbs, Oakes, Hansasuta ( Univ. of Alabama) published years ago that 3 out of 27 normal cadavers had off midline fusion of filum and dura in the sacrum.
Would love to get enough energy to do blog: Appreciating the interface and function of the central nervous system and musculoskeletal system.
Working with a very gifted Filipina woman now. A strange chance connection, and absolutely the best body worker I have experienced. She is from the Hillot tradition of ancient healing in the Phillipines. Speaks little English. Goes right to problem areas. Appreciates how important the pelvis is. Tells me she is doing "body overhaul."