Has anyone treated their gut enough to improve their CFS symptoms?

[Rockt]

Sorry to hear you're still suffering. Hopefully we can all find a way out, or at least a more livable level.
Yes, let's keep in touch. I would love to hear more about people who've recovered with FMT.

 

[Daffodil123]

here is one woman who is 80% better: https://uninvisiblepod.com/episodes/episode-19-lyme-disease-sascha-alexander/

here is another: https://carrotquinn.com/2017/07/09/...ibs-and-chronic-fatigue-with-monthly-updates/

the guy who runs microbioma.org is another one.

there was a guy on this forum too, who deleted his post:

Poo Transplant resolved my ME :-) [Deleted]

Stoo Brown submitted a new resource: Poo Transplant resolved my ME :-) - The Power of Poop I am a 53 year-old white British male living in Scotland. I had ME for ten years. Initially it was mild (although severe during relapses) and I was able to do quite a lot - although I had to retire from...

www.healthrising.org

there are some stories on Reddit too, I think. Here is one:

https://www.reddit.com/r/cfs/comments/cm7tax

there are several in the FB groups and others I have spoken to, who do not post much. I won't put their info here but if you join the FB groups, you can make a post. This is the biggest group:

Log into Facebook

Log into Facebook to start sharing and connecting with your friends, family, and people you know.

www.facebook.com

good luck!

ps. I cannot work but I am not suicidal or anything anymore. my life is tolerable now.

 

[Rockt]

Wow, thank you! These are amazing stories, though I wish I could read the Stoo Brown story that's been deleted. Lots of good resources I still need to read about too. All very encouraging.

 

[Daffodil123]

Stoo Brown just said he used poop from his niece, did several enemas (cannot remember how many) and was cured. There are those who did many colonoscopy FMT's and were cured. A couple of people literally drank the poop straight (cannot recommend) over a year or 2, multiple times a week, and now live normal lives with occasional boosters. One guy who I think was housebound or maybe bedridden, regularly posts pictures of himself downhill skiing and rock climbing now

 

[Daffodil123]

here is a case study: https://www.scirp.org/journal/paperinformation?paperid=75761

 

[Rockt]

Daffodil, PM'd you.

 

[MaximilianKohler]

Oh man, now I'm really frustrated because... I just used up most of my limited brain power searching for and reading about FMT in Ontario, Canada and there is a ton of research going on in my neighboring city. Lots of studies on FMT for IBD, cancer, mental health issues. But how to access them? Contact info. is really hard to find but I did find one doctor's email address. I'll write to him but I've tried contacting research physicians before with limited responses.

You should read the link I shared in comment #10 above. I would never enroll myself in one of those trials.

I am in the same city as you are lol. Hundreds are doing it themselves. Join the FMT groups on FB

Don't do this. They are riddled with scammers. Anyone recommending them is likely one as well. Read through this: https://humanmicrobiome.info/where-to-get-fmt/#intro

the guy who runs microbioma.org is another one.

This guy is a serial liar (see link above). @Daffodil123 appears to be working with him.

 

[Daffodil123]

lol oh brother. if I were working for him, I would have all the free poop I wanted