This thread is so sad - Jamieson is a part of all of us due to his courage and compassion in FP, and his disease progression is devastating - yet at the same time, it absolutely resonates for me and thus I feel cheered in a somewhat 'sick' way. The trajectory of this disease is not 'just me', so thank you Cort and all of you for staying connected. I am my own worst enemy with pacing (as so many of us are!) and yet again in a call today with one of the health team I work with, they reminded me that the longer I neglect pacing, and as I age (just turned 65 - yikes!), the less capacity my body has to consider recovery. I realize that I keep getting caught in that old loop of the overachiever personality that if only I just push a little I will get better. Pacing not working is frightening isn't it? Bon Marie, good luck with your move. We moved into the dry desert but the location factor hasn't really helped and in fact my system has got significantly worse these past 3 years. We have just sold and are now locating to a more accessible, easier care house. The spiral costs of this disease - so much, and so little is documented.