LDN Uses (Crohn's and MS & More)

jaminhealth

Well-Known Member
Has LDN been discussed here? I just sent this to two friends who suffer with Crohns.

https://www.ncbi.nlm.nih.gov/pubmed/24558033

I attempted to get my sister to look into it, but she listened to her high priced drug doctors. Sad but true.

I tried it for OA issues probably 10 yrs ago and it didn't help me. I gave it 6 months. But it worked ONE day, the first day and never after that...I'll never know why...Doesn't matter now. But I gave it a good run.
 

IrisRV

Well-Known Member
My ME/CFS specialist prescribes it for me. I've been taking it for several years now. It works for me, but I hear it's hit and miss whether it works for ME/CFS patients. We have a variety of symptom clusters, so I suppose if you don't have whatever symptoms LDN helps, it won't do anything for you.

I believe the correct dose matters. I know our doctor adjusted the dose for a while. If you only tried one dosage amount, it's possible you didn't get the correct dose for your body.

BTW, what is OA?
 

jaminhealth

Well-Known Member
My ME/CFS specialist prescribes it for me. I've been taking it for several years now. It works for me, but I hear it's hit and miss whether it works for ME/CFS patients. We have a variety of symptom clusters, so I suppose if you don't have whatever symptoms LDN helps, it won't do anything for you.

I believe the correct dose matters. I know our doctor adjusted the dose for a while. If you only tried one dosage amount, it's possible you didn't get the correct dose for your body.

BTW, what is OA?
OA - OsteoArthritis

I know I could only tolerate .5mg and know when I tried to take more I would get awful reactions and don't remember what they were but constipation was a big one. The LDN group kept urging me to take more and get to the 4.5mg recommendation, but I could not see pushing myself to that. Guess it was NOT for my health condition, but hear good things about it otherwise.

Good to hear your positive report.
 

IrisRV

Well-Known Member
The LDN group kept urging me to take more and get to the 4.5mg recommendation,
We had to go up to 4.5mg before we got a good effect. I understand the side effects problem. We had to work up very slowly. I think it was something like increasing by 0.5 mg every 2-4 weeks, going back down for a week or two if we had any side effects. IIRC, we could increase dose faster toward the end, maybe increase 0.5 every 1-2 weeks.

If it works for you it's great, but it's not for everyone, as you found out.
 

Farmgirl

Well-Known Member
My ME/CFS specialist prescribes it for me. I've been taking it for several years now. It works for me, but I hear it's hit and miss whether it works for ME/CFS patients. We have a variety of symptom clusters, so I suppose if you don't have whatever symptoms LDN helps, it won't do anything for you.

I believe the correct dose matters. I know our doctor adjusted the dose for a while. If you only tried one dosage amount, it's possible you didn't get the correct dose for your body.

BTW, what is OA?
@IrisRV LDN changed my life and allowed me to be off mild narcotic use after 8 years.
 

IrisRV

Well-Known Member
@IrisRV LDN changed my life and allowed me to be off mild narcotic use after 8 years.
I remember the first pharmacist who filled my LDN prescription lamenting that more doctors didn't try it for pain since it's effective and easier on your body than a lot of other prescription pain meds.
 

jaminhealth

Well-Known Member
I remember the first pharmacist who filled my LDN prescription lamenting that more doctors didn't try it for pain since it's effective and easier on your body than a lot of other prescription pain meds.
And cheaper, they make a lot more profit on the damaging drugs. I tried it for 6 months but couldn't get it to work...and stayed at .5mg and tried to go up but I would have issues and could not go up with dosing. Guess it was not for my body. But I hear it helps so many...a person on another group is taking LDN for over a year for MS and doing good with and no MS drugs or if any one.
 

IrisRV

Well-Known Member
And cheaper, they make a lot more profit on the damaging drugs. I tried it for 6 months but couldn't get it to work...and stayed at .5mg and tried to go up but I would have issues and could not go up with dosing. Guess it was not for my body. But I hear it helps so many...a person on another group is taking LDN for over a year for MS and doing good with and no MS drugs or if any one.
Indeed, very much cheaper -- ridiculously cheap if you buy pills and dilute yourself. As a one-time lab tech, I know the risks of doing that so I prefer not to, but many people have no other choice.

Did you try the super slow dose increasing and taking it at night? If you really would like to use LDN, it might be worth trying if you haven't already. I vaguely remember a couple of people saying they took 6 months or more to get to full dose by tiny increments. That said, it simply doesn't work with some peoples' chemistry. Nothing you can do about that.
 

jaminhealth

Well-Known Member
Indeed, very much cheaper -- ridiculously cheap if you buy pills and dilute yourself. As a one-time lab tech, I know the risks of doing that so I prefer not to, but many people have no other choice.

Did you try the super slow dose increasing and taking it at night? If you really would like to use LDN, it might be worth trying if you haven't already. I vaguely remember a couple of people saying they took 6 months or more to get to full dose by tiny increments. That said, it simply doesn't work with some peoples' chemistry. Nothing you can do about that.
I'm not going to try it again and don't know if I took it at night or not. Constipation was bad for me.

I'm happy it helps so many and they are not going broke using it. J
 

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