Lenny Jason Requests YOU Take His Post-exertional Malaise Survey - For People with ME/CFS

[Cort]

"I invite those with ME and CFS to participate in an online survey (link below) for a research study on the patients’ experience with post-exertional malaise and how they define the symptom. The research survey will take approximately 30 minutes of your time. More information is provided on the first page of the survey.

You can access the survey at the following link: https://redcap.is.depaul.edu/surveys/?s=oCPGRbIDTd

Thank you for your assistance."

 

[TigerLilea]

Done!

 

[Who Me?]

I looked at it but it's too much for me. I can't think and PEM from thinking is just as bad.

Kind if poetic that PEM stops me from participating in something about PEM.

 

[Cort]

Done!

Thanks - Lenny looks almost angelic in that picture doesn't he?

 

[Cort]

I looked at it but it's too much for me. I can't think and PEM from thinking is just as bad.

Kind if poetic that PEM stops me from participating in something about PEM.

There is something very right about that in a weird way...

 

[TigerLilea]

I looked at it but it's too much for me. I can't think and PEM from thinking is just as bad.

Kind if poetic that PEM stops me from participating in something about PEM.

How about doing a bit at a time? You can stop and save the survey and come back to it later.

 

[Who Me?]

Can't do it. It has nothing to do with the time.

I'm curious if that even addresses PEM from a cognitive standpoint. Obviously he isn't aware that 30 minutes of having to think is a struggle.