low carb and MCAS

Discussion in 'Mast Cell and Histamine' started by ankaa, Dec 1, 2016.

  1. ankaa

    ankaa Well-Known Member

    in addition to low histamine, does going low carb help MCAS? I'm miserable today, and no amount of quercetin can seem to fix it.. My eyeballs are going to fall out of my head!
     
  2. Kate

    Kate Member

    I can't really say, I haven't got my mast cell/histamine piece worked out yet, but I know in the Spring when I am at my worst with a pollen intolerance as well as allergy I try not to eat before noon or two, encouraging mild ketosis and it helps a lot. My diet is always fairly low carb. Also I drink a teaspoon of bentonite clay in water on my worst days which really helps. And a good bath with some bentonite clay and epsom salts is at least soothing, seems to reduce reactions.

    It seems to me on these days eating a piece of bread can make it worse. This might indicate for me that low carb is better. I do not seem to be sensitive to gluten.
     
    Last edited: Mar 20, 2017
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  3. Kate

    Kate Member

    Last edited: Mar 20, 2017
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  4. ankaa

    ankaa Well-Known Member

  5. Lolinda

    Lolinda Member

    In my case, low carb contributed to get me happily free of nearly all symptoms. But I had to go verrry low carb to get the effect. I am under the impression though, that I have only suppressed symptoms but not the pathomechanism itself, whatever that is.
    ➞ Details what I did and what resolved here. (The link points to Phoenixrising. I am slowly about to leave Phoenixrising for Healthrising.)

    A question:
    Here it says:
    • many can experience a general worsening trend over time
    How does this match with your experiences? Does anyone know what causes the worsening?
     
    Last edited: Apr 13, 2017
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  6. ankaa

    ankaa Well-Known Member

    Yes, I having have been on a push- crash cycle my whole life... I'm not as sick as some, (no POTS, thankfully.. that would put me over the edge) but I don't have a good quality of life either... plus I'm broke... currently, I'm coming out of a crash but I'm generally not as strong as I used to be and I have to work harder than ever to catch up, which freaks me out

    How low carb did u have to go? 20 grams of carbs per day?
     
  7. Lolinda

    Lolinda Member


    Why on earth does the "float left" not put the text to the right and the pic to the left??
    IMG_20170414_031035.jpg
    The above is a random day.

    I never thought of eating "x g carbs per day" but as "tons of starch-free veggies, tons of butter, some coconut oil, some cocoa butter and olive oil, and much freshly grilled fish and some meat." It feels happier this way :)


    Tha waxing and waning I can (more exactly: could :) ) live with. But the general worsening over a long time is what worries me. Do you have that too?
    • I had that before resolving symptoms by low carb, motivity improvements, etc.
    • But I still have it because if I accidentally eat a little starch, I get meanwhile so so so badly sick. worse and worse.
    This is what really worries me. What if one day even my very low carb is no more enough? I wish I knew more about this worsening trend, what the pathomechanism is, and how the worsening happens in others, and if anyone ever was able to stop the trend. In me, the trend is not only felt strongly but measured as methylhistamine in 24h urine:
    • 2011 (full-grain high fat diet, deteriorating health, still more healthy than sick): 6.6 (< 6.5) µg/nmol creatinine
    • 2016 (very low carb since 2014, more sick than healthy, though meanwhile many probs resolved): 7.5 (< 6.5) µg/nmol creatinine
     
    Last edited: Apr 14, 2017
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  8. Kate

    Kate Member

    She says it isn't that simple. Some foods can be tolerated and then should be. That eliminating all histamine foods can sometimes increase your sensitivity to them. I found this with salicylates. When I decreased eating them to virtually nil I reacted far more when I did eat some.
     
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