ME CFS caused by infection / parasite?

ry350

New Member
Hi all. Im new here.

Basically my issues began around a year back. Chronic gastro issues. Fatty stools. Weight loss. I was screened for Celiac but all the specialist found was Duodentitis (?).

Since then - gradually - I have got worse. I weigh 115 lbs (male) and I look like a skeleton (with facial hair).

Now around the time I got ill, my cat was riddled with fleas, angry, depressed and also had really bad worms - I actually found one on the kitchen surface one day. Yak.

Now I get mucus in stools (smells like sickly sweet fish, wondrous), persistent dizziness, overwhelming fatigue, random and tender lymph nodes under armpit that disappear a day later and what appears to be dysautonomia (morning im cold, evening im hot, bp is low in the morning, higher in the evening). One evening I was actually 34 degrees (hypothermia) and felt confused.

Oh and Im being investigated for Malabsorption. I seem to eat, something happens, I poo it out and do not feel better (feel worse, drained and tired).

Ive had a CT today w/iodine. Ive had 2 brain MRI's and countless bloods (everything is hunky dory apart from Low lymphocytes and raised Immunoglobulins).

Now I got told by my doc that because my symptoms appear so general at times, and nothing pops up on bloods (ESR, CRP all low) that it could be ME / CFS, which scares me. (Anything chronic and mysterious scares me).

Im sceptical and I am still pretty much adamant that this is some chronic, stubborn infection or parasite, as I have these rushes of sympathetic nervous system overload, pupiles dilate, bp goes up, I get panicky and then I need to pass a bowel motion, and sometimes I feel better for doing so (anyone any ideas as to what THE HELL that is??)

Has anyone been in the same boat with troubles getting a diagnosis for such a thing? And has anyone with ME had parasites before? Or found that was what kicked off their ME?

Thanks
 

pbyr

Active Member
Yes. It would be highly suspicious of a gastro infection. Here is a post that might be helpful. Let me know if you have questions.

 

ry350

New Member
I seem to also have these times lately whereby - early morning / day time - my hands are freezing and my body to the core is freezing. Yet seemingly all of a sudden I get temperature fluctuations and go abit hot and my hands go a bit red.

As though someone is in my body playing around with the thermostat? My TSH level is fine (2.45)

Wth.
 

Abrin

Well-Known Member
Has anyone been in the same boat with troubles getting a diagnosis for such a thing? And has anyone with ME had parasites before? Or found that was what kicked off their ME?
I've never got an official diagnosis of ME/CFS (it is a five year waiting period to see someone in my area and I just have way better ways to use my energy) but when they were first trying to figure what was wrong with me they did send me to an infectious disease specialist and he told me that I was parasite-free.

It is easy for me to know what kicked off my ME because I was born with it.
 

pbyr

Active Member
I seem to also have these times lately whereby - early morning / day time - my hands are freezing and my body to the core is freezing. Yet seemingly all of a sudden I get temperature fluctuations and go abit hot and my hands go a bit red.

As though someone is in my body playing around with the thermostat? My TSH level is fine (2.45)

Wth.
Infections create quite a few problems, so your experience is normal with those with infection.
 

Apo Sci

Active Member
Hi all. Im new here.

Basically my issues began around a year back. Chronic gastro issues. Fatty stools. Weight loss. I was screened for Celiac but all the specialist found was Duodentitis (?).

Since then - gradually - I have got worse. I weigh 115 lbs (male) and I look like a skeleton (with facial hair).

Now around the time I got ill, my cat was riddled with fleas, angry, depressed and also had really bad worms - I actually found one on the kitchen surface one day. Yak.

Now I get mucus in stools (smells like sickly sweet fish, wondrous), persistent dizziness, overwhelming fatigue, random and tender lymph nodes under armpit that disappear a day later and what appears to be dysautonomia (morning im cold, evening im hot, bp is low in the morning, higher in the evening). One evening I was actually 34 degrees (hypothermia) and felt confused.

Oh and Im being investigated for Malabsorption. I seem to eat, something happens, I poo it out and do not feel better (feel worse, drained and tired).

Ive had a CT today w/iodine. Ive had 2 brain MRI's and countless bloods (everything is hunky dory apart from Low lymphocytes and raised Immunoglobulins).

Now I got told by my doc that because my symptoms appear so general at times, and nothing pops up on bloods (ESR, CRP all low) that it could be ME / CFS, which scares me. (Anything chronic and mysterious scares me).

Im sceptical and I am still pretty much adamant that this is some chronic, stubborn infection or parasite, as I have these rushes of sympathetic nervous system overload, pupiles dilate, bp goes up, I get panicky and then I need to pass a bowel motion, and sometimes I feel better for doing so (anyone any ideas as to what THE HELL that is??)

Has anyone been in the same boat with troubles getting a diagnosis for such a thing? And has anyone with ME had parasites before? Or found that was what kicked off their ME?

Thanks
I was recovering from mononucleosis (EBV) when I had a flea bite from a feral cat. This led to a purple postule at the bite site and my condition deteriorated. I think that infection with bacteria and viruses that block apoptosis are the fundamental cause of the myalgic encephalomyelitis diseases. The onslaught against the immune system causes it to become overwhelmed and the infections to silently proliferate. Dr. Lehrner postulated that two similar viruses can interact to cause a latent infection which is invisible to testing.
 

Not dead yet!

Well-Known Member
Doctors ignore parasites, even in the places I've lived where they're endemic. Two things you can do.. first, you can try alternatives like wormwood and if you recover, you know you had the parasites.

The other thing is to buy pyrantel from an online store (such as Amazon). This is the anti-parasitic given to Australian children, it often has instructions for human use, although in the US it's sold as a cat anti-parasitic. In any case, it's safe for human use.

I took it after I cleaned up my cat from a flea and worms infestation. It seemed to also help me feel more energetic, since then I've repeated taking it about three times a year. Every time I feel better for a while. I went to see an infectious disease doctor, it was a disaster, they completely ignored my problems. One of the worst experiences of my life with any doctor.

If your pet goes outside, you must use ivermectin type meds to keep them safe and yourself safe. Only a vet can give your cat that med, at the proper dose, it covers many types of worms although for active tapeworm they may use a different med.

Yes infection can lead to ME/CFS. If you suspect a parasite a visit to a functional MD may be the ticket. Here's one doctor talking about it on her blog: https://www.amymyersmd.com/2017/05/10-signs-you-may-have-a-parasite/
 
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Not dead yet!

Well-Known Member
I seem to also have these times lately whereby - early morning / day time - my hands are freezing and my body to the core is freezing. Yet seemingly all of a sudden I get temperature fluctuations and go abit hot and my hands go a bit red.

As though someone is in my body playing around with the thermostat? My TSH level is fine (2.45)

Wth.
My TSH has always been fine too. Probably, Celiac had caused the T3 in my body to be deactivated. Only a Reverse T3 test will show if that's happening to you. Few if any ordinary doctors do that. I had to go to a Functional MD to get that worked out. I take liothyronine.

Of course if you're a woman in her 50s, then it's probably hormones.
 

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