meisnotMUPS
Member
It would mean a lot if you would take 1 minute and be one of the remaining 970 signatures we need to reach the goal of presenting 10,000 signatures to the Dutch Health Council. https://meisgeensolk.petities.nl/?locale=en
This is what Invest in ME wrote about this petition in their July Newsletter
Petition to the Dutch Health Council
Invest in ME Research invited the Dutch Health Council to the 2017 conference events in London - and, sharing much in common with UK establishment organisations, they did not reply. Perhaps this may get their attention - https://meisgeensolk.petities.nl/?locale=en
A Dutch petition - ME is not MUPS: Change Dutch Health Council Committee and adhere to the advisory report assignment
The Dutch Guidelines are based on NICE - and have been made part of a broader Medically Unexplained Physical Symptoms (MUPS) guideline. As the Dutch advocates state –
'BPS proponents/Dutch PACE colleagues with vested interests, who are still advocating CBT/GET as safe and effective and as the only "evidence based" treatment, should have no place in deciding future health policy for ME patients and how to spend valuable research money.'
The Dutch Health Council report will go to parliament and determine the care and research spending for the next decade - a similar corrupted scenario being shaped as was planned for the UK.
The Dutch are suffering in the same way as UK patients by the negligence and flaws in establishment organisations – and the apathy of government departments who should be demonstrating responsible management of the problem.
https://meisgeensolk.petities.nl/?locale=en
Please share and sign (you can sign from any country, anonymous if you want, just don't forget to click on the confirmationlink in your email after you sign, once you have done that your signature counts)
This is what Invest in ME wrote about this petition in their July Newsletter
Petition to the Dutch Health Council
Invest in ME Research invited the Dutch Health Council to the 2017 conference events in London - and, sharing much in common with UK establishment organisations, they did not reply. Perhaps this may get their attention - https://meisgeensolk.petities.nl/?locale=en
A Dutch petition - ME is not MUPS: Change Dutch Health Council Committee and adhere to the advisory report assignment
The Dutch Guidelines are based on NICE - and have been made part of a broader Medically Unexplained Physical Symptoms (MUPS) guideline. As the Dutch advocates state –
'BPS proponents/Dutch PACE colleagues with vested interests, who are still advocating CBT/GET as safe and effective and as the only "evidence based" treatment, should have no place in deciding future health policy for ME patients and how to spend valuable research money.'
The Dutch Health Council report will go to parliament and determine the care and research spending for the next decade - a similar corrupted scenario being shaped as was planned for the UK.
The Dutch are suffering in the same way as UK patients by the negligence and flaws in establishment organisations – and the apathy of government departments who should be demonstrating responsible management of the problem.
https://meisgeensolk.petities.nl/?locale=en
Please share and sign (you can sign from any country, anonymous if you want, just don't forget to click on the confirmationlink in your email after you sign, once you have done that your signature counts)
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
