Founder of Health Rising and Phoenix Rising
[fright][/fright]This is different. The NIH is asking for your help in determining which research areas and topics they should included in their effort to advance ME/CFS research. This is for everyone - researchers, doctors, patients and organizations. They would also like to know about challenges and barriers to research.
Good afternoon. The Trans-NIH Working Group has issued a Request for Information (RFI) to help identify research areas and topics to be included in strategies to advance research efforts on ME/CFS.
Through the RFI, the Trans-NIH ME/CFS Working Group invites input from anyone with an interest in the NIH’s research efforts on ME/CFS, including researchers, health care providers, patient advocates and health advocacy organizations, and scientific or professional organizations. You are invited to submit your comments to MECFSRFI@mail.nih.gov through June 24, 2016.
Please provide your perspective on the following issues:
- Emerging needs and opportunities that should be considered as new ME/CFS research strategies are developed.
- Challenges or barriers to progress in research on ME/CFS.
- Gaps and opportunities across the research continuum from basic through clinical studies.
The Trans-NIH ME/CFS Working Group also welcomes your general comments.
The members of the Trans-NIH ME/CFS Working Group will review and consider the comments received under this RFI as they develop strategies for ME/CFS research and research training.
For more information about NIH activities on ME/CFS, please visit www.nih.gov/mecfs.
Director, Office of Communications and Public Liaison/NINDS
NIH Building 31, Room 8A07
Phone: (301) 496-5924