NIH Study Participants Needed

Discussion in 'General Discussion' started by Tina, Oct 26, 2018.

  1. Tina

    Tina Well-Known Member

    I don't understand how they are not finding enough participants. As large as our community is and as much as we are suffering we should have people flooding this study. I met all of the requirements except the length of illness which is 6 months to 5 years. (I have been sick for over 10 years) I suspect length of illness is one of the big stumbling blocks, this and people being too sick to participate. I participated in the Outpatient Focus Group and I was / am so hopeful for this study. In 2016 this was a big deal. So excited that we were getting a serious study through the NIH. What has happened?

    There were only 271 initial inquires. This seems so low to me. After screening they have only found 15 ME/CFS patients and 17 healthy controls.

    If you can spread the word and consider participating if you can.