NPR and CDC are suppose to do CFS Programs

[JennyJenny]

I sent this E-mail to NPR as their show "Morning Edition" is suppose to be working with the CDC on 4-6 shows a year for the next 3 years. I want them to get it right.

If you want to write to them I think it would be a good idea. Send them information on whatever research or researchers you would like them to be informed about or maybe even your personal story or a link to personal stories or whatever. The more they are informed the better this will go for us. I don't know if these will be done in interview formats but since that is how much of NPR does their shows and people listed to and read their site (it will be on both) we need to help get this right. Use this page to send an e-mail to MORNING EDITION http://help.npr.org/customer/portal/emails/new

MY EMAIL:
Please get this right. https://www.fbo.gov/?s=opportunity&mode=form&id=c0a46db8a59d74a0cc8cc94cac71c5b0&tab=core&_cview=0

We are holding our breath as it is as to what the CDC is going to do with our DISEASE but I thought I must might say to you that this is NOT a psychiatric illness and that psychiatric madmen have hijacked this disease for their own self promotion and protocols and have been bought off by drug companies to shove depression medication down our throats. (As if they don't have enough true mental health issues in the world to work on they take a DISEASE they cannot understand and destroy our lives further.) And it hasn't even been as bad in the US as it has in the UK where it is out of control with the NSH and ME Clinics.

Here is some research you can do: Stanford fMRI Brain Scans done by Dr. Montoya
http://well.blogs.nytimes.com/2014/...-fatigue-syndrome-offer-clues-about-disorder/

Invisible Illness - Chronic Fatigue Syndrome 13 min.
Mini-Doc

Dr. Mady Hornig of Columbia Mailman School

(She works along with Ian Lipkin and they are now researching gut microbes.)

Dr. Nancy Klimas is now with the Nova SouthEastern Inst. in Miami

Dr. Davis is now funded and researching the severely ill which includes his son.

Autoantibodies Found In Subset of CFS Patients
http://www.meaction.net/2015/09/26/antibodies-found-in-subset-of-cfs-patients/

 

[Cort]

I sent this E-mail to NPR as their show "Morning Edition" is suppose to be working with the CDC on 4-6 shows a year for the next 3 years. I want them to get it right.

If you want to write to them I think it would be a good idea. Send them information on whatever research or researchers you would like them to be informed about or maybe even your personal story or a link to personal stories or whatever. The more they are informed the better this will go for us. I don't know if these will be done in interview formats but since that is how much of NPR does their shows and people listed to and read their site (it will be on both) we need to help get this right. Use this page to send an e-mail to MORNING EDITION http://help.npr.org/customer/portal/emails/new

MY EMAIL:
Please get this right. https://www.fbo.gov/?s=opportunity&mode=form&id=c0a46db8a59d74a0cc8cc94cac71c5b0&tab=core&_cview=0

We are holding our breath as it is as to what the CDC is going to do with our DISEASE but I thought I must might say to you that this is NOT a psychiatric illness and that psychiatric madmen have hijacked this disease for their own self promotion and protocols and have been bought off by drug companies to shove depression medication down our throats. (As if they don't have enough true mental health issues in the world to work on they take a DISEASE they cannot understand and destroy our lives further.) And it hasn't even been as bad in the US as it has in the UK where it is out of control with the NSH and ME Clinics.

Here is some research you can do: Stanford fMRI Brain Scans done by Dr. Montoya
http://well.blogs.nytimes.com/2014/...-fatigue-syndrome-offer-clues-about-disorder/

Invisible Illness - Chronic Fatigue Syndrome 13 min.
Mini-Doc

Dr. Mady Hornig of Columbia Mailman School

(She works along with Ian Lipkin and they are now researching gut microbes.)

Dr. Nancy Klimas is now with the Nova SouthEastern Inst. in Miami

Dr. Davis is now funded and researching the severely ill which includes his son.

Autoantibodies Found In Subset of CFS Patients
http://www.meaction.net/2015/09/26/antibodies-found-in-subset-of-cfs-patients/

Thanks JennyJenny and great list of resources!