Just before Christmas I had an article on severe ME published on the website openDemocracy.
"No terminology exists to describe lives blighted by the severest forms of the illness. Confined to their bed, and often tube-fed, those afflicted are so intolerant of any light or sound that even a whisper can induce a dangerous worsening of symptoms. Pain is usually extreme and unrelieved even by morphine. Paralysis, seizures and incontinence are not uncommon."
https://www.opendemocracy.net/naomi...26-years-on-why-is-it-still-poorly-understood
"No terminology exists to describe lives blighted by the severest forms of the illness. Confined to their bed, and often tube-fed, those afflicted are so intolerant of any light or sound that even a whisper can induce a dangerous worsening of symptoms. Pain is usually extreme and unrelieved even by morphine. Paralysis, seizures and incontinence are not uncommon."
https://www.opendemocracy.net/naomi...26-years-on-why-is-it-still-poorly-understood
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
