Please see the latest update from the campaign below. £24,800 has now been donated which is great.
The law, however, does not wait forever. Neglect of ME has become a habit in Government that justice will not condone. The deadline in our most recent correspondence has been neglected, bringing this campaign another step closer to court,
"We therefore request again that the Secretary of State responds to the points above [..] by no later than 4pm on 6 November 2026."
Too much time in too many lives has been wasted. Every single one of these people has a contribution they are longing to make.
Meet Andrew Gifford, depleted 47 year old, housebound by ME/CFS and unable to work. Using photography to show what life with ME is like.
"ME has taken so much from me over the past 30 years. It has brought financial, social, career and personal life ruin. It meant I didn't become a father. It destroyed my small business. My savings are spent and my pension is not viable. I live in isolation, barely leaving the house in seven years. I've missed so much of family life - precious moments that I can never get back. The pittance in welfare from the DWP does not nearly mitigate the cost of the absence of clinical support from our NHS. The future is extremely uncertain. It's infuriating to see the people who have frustrated clinical progress being awarded prominent and impactful positions in government policy. The ME community has been dealt a massive medical injustice for 40+ years and this must now be put right. We urgently need committed research funding and effective front line clinical support, with more appropriate welfare amounts meanwhile. I desperately want to rebuild my life and make the most of what remains."
https://linktr.ee/andrewgifford.photography
From elite athletes to self supporting photographers, every person living with ME in the UK deserves to know they will be given safe medical treatment by a national health service supposed to be for everyone, regardless of ability to pay. Why must we take legal action to have it?
Thanks, as always, for your ongoing support. Watch out for our next update and please, ask everyone you know to share this campaign with everyone they know.
https://www.crowdjustice.com/case/justice4me/
Government Legal Department fails
If there were prizes for waiting, people living with ME would be world champions. Not because we are patient people, just because we have no choice but to wait.The law, however, does not wait forever. Neglect of ME has become a habit in Government that justice will not condone. The deadline in our most recent correspondence has been neglected, bringing this campaign another step closer to court,
"We therefore request again that the Secretary of State responds to the points above [..] by no later than 4pm on 6 November 2026."
Too much time in too many lives has been wasted. Every single one of these people has a contribution they are longing to make.
Meet Andrew Gifford, depleted 47 year old, housebound by ME/CFS and unable to work. Using photography to show what life with ME is like.
"ME has taken so much from me over the past 30 years. It has brought financial, social, career and personal life ruin. It meant I didn't become a father. It destroyed my small business. My savings are spent and my pension is not viable. I live in isolation, barely leaving the house in seven years. I've missed so much of family life - precious moments that I can never get back. The pittance in welfare from the DWP does not nearly mitigate the cost of the absence of clinical support from our NHS. The future is extremely uncertain. It's infuriating to see the people who have frustrated clinical progress being awarded prominent and impactful positions in government policy. The ME community has been dealt a massive medical injustice for 40+ years and this must now be put right. We urgently need committed research funding and effective front line clinical support, with more appropriate welfare amounts meanwhile. I desperately want to rebuild my life and make the most of what remains."
https://linktr.ee/andrewgifford.photography
From elite athletes to self supporting photographers, every person living with ME in the UK deserves to know they will be given safe medical treatment by a national health service supposed to be for everyone, regardless of ability to pay. Why must we take legal action to have it?
Thanks, as always, for your ongoing support. Watch out for our next update and please, ask everyone you know to share this campaign with everyone they know.
https://www.crowdjustice.com/case/justice4me/
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
