New member here! With my me/cfs I experience severe flu like symptoms that never fully clear up (not the typical post exertional fatigue). One of the stranger things that has happened to me since my diagnosis is a numbness and swelling in my back, neck, and face. I can pinpoint the day I got sick and the facial swelling started almost immediately (something that was reminiscent of when I was first diagnosed with mono a couple years prior). It is pretty mild but noticeable to myself, people who know me well, and if people are looking at my face long enough and is worst at my jaw on both sides. Although when I have my really flu fare ups it gets much puffier, almost making my face distorted, and feels really tight and uncomfortable (not to mention it makes me a lot more self conscious) and has almost a tingly or buzzing sensation. The swelling is accompanied by a loss of sensation, that is also present in my neck and back (as well as other parts of my body that swell up). Has anyone else every had experience with this? Anything that has helped? Etc....? Just trying to understand what is going on as my doctors typically just shrug their shoulders at this aspect of my illness. (I am 24 and previously incredibly active and healthy so this year has been challenging to get doctors to take me seriously as I "seem and look healthy" to them).