Telling the Story of a Forgotten Plague: Chronic Fatigue Syndrome - By: Ryan Prior

[JennyJenny]

Telling the Story of a Forgotten Plague: Chronic Fatigue Syndrome - By: Ryan Prior

 

[loki]

impressing! but i wonder how he is able to "work 14hour days" with full blown CFS i can't do that
nevermind

 

[Who Me?]

I know people with CFS who are able to work and lead semi normal lives if they watch what they do. That is clearly a subset of this disease.

I thought the same thing about Ryan until I saw 'Forgotten Plague' and then I was glad we have people like him, who can function, to tell our story

 

[Cort]

Telling the Story of a Forgotten Plague: Chronic Fatigue Syndrome - By: Ryan Prior

As I recall he was pretty bad off and got much better over time although some people if they're sedentary they can do a lot. I can do quite a bit if I don't too much "exercise" and pace myself. Other people just get completely whacked by mental exertion.

 

[Cort]

This is pretty nuts

I publicly asked questions about the prospect of receiving government grants to prop up our organization and we were bombarded with criticism. A few said it was like I was selling my soul to the devil.

Jenn Brea has said it's wild how many other things you have to learn to get the film done and out

At each stage, the learning curve is still just as steep. And the trauma and workload is always threatening to overtake me.

Ryan is definitely a good writer. I look forward to seeing the film someday.