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The Chronic Fatigue Syndrome and Fibromyalgia Symptom Description Thread

Discussion in 'Symptoms' started by Cort, Aug 2, 2015.

  1. Dana L Lauren

    Dana L Lauren Member

    Do you notice the flu symptoms MORE when you are short on sleep? I DO
    Tami likes this.
  2. Dana L Lauren

    Dana L Lauren Member

    I have said this A LOT...to my daughter, getting out of bed seems like an EPIC task...I am exhausted, just LIFTING my head from the pillow...I drink WAY too much coffee and it just BARELY makes me awake enough to get in the shower...I look like hell when I arrive at work and everyone asks if I am "doing ok", since I occasionally have GOOD DAYS, I think that THEY THINK I am Bi-polar (since I look totally different, i.e. hair and make up are done...face isnt droopy). Does anyone experience GOOD DAYS that seem a world apart from your bad ones?
    Tami and Merry like this.
  3. Dana L Lauren

    Dana L Lauren Member

    I GET THE COLD FEET THING ALSO, it gets old...I think people feel as if you are a whiner. But they aren't just chilly, they are "painfully freezing" like you said. That is different.
    Telula, Lissa, Merry and 1 other person like this.
  4. Dana L Lauren

    Dana L Lauren Member

    THE headaches are indescribable sometimes...aren't they? Sometimes it feels like an ice pick going RIGHT through my eye. At other times, it feels like my head is a pressure cooker and it is boiling and swelling...I can feel the throbbing of it...everywhere...it also leaves me more brain fogged, than the usual brain fog I suffer from...brutal
    Debbie Iverson and Merry like this.
  5. Eva Nagy

    Eva Nagy New Member

    I can relate to the pain increasing when energy is gone (if I have energy at a given time). Also exactly what you said about your stomach and if we do have a good day when we wake and this happens, I know for me that anything planned has to be cancelled. IBS is horrible, and I know it varies with everyone but a bad attack can last for weeks. I drink pediolite when I get like this to put electrolytes back into my body and take probiotics as well.

    What concerns me is one of my newer symptoms you mentioned: stand too long, I get dizzy, lightheaded, and just started getting that blackout feeling like I am going to faint. As if the rest of it wasn't bad enough. I would understand a little better if it happened on a day that I maybe pushed too hard but I haven't been able to do much lately at all. I have to make my own lunch, and sometimes I have to sit down between even making a simple sandwich. Have you been given a reason for this? I haven't told my Dr. yet. Take Care
    Debbie Iverson and Merry like this.
  6. JayneL62

    JayneL62 New Member

    Aside from others already mentioned I hate the feeling my joints are being unscrewed/wrenched apart it results in ball of fire in (particularly) the arms & hands; also it's NEVER feeling awake, the permanent haze is dangerous as it completely ruin spatial awareness
    Merry likes this.
  7. Lettie

    Lettie New Member

    Powerful words, but the image associated with your name/membership is what i connected with, feel like. Where did you find that? If you don't mind me asking.
  8. Slusterbubble

    Slusterbubble New Member

    How about this symptom description? The multitude of seemingly unrelated symptoms associated with FMS constitute a hypochondriac's dream. Try to imagine the physician's disposition if a patient tells him that he is simultaneously experiencing ALL of the following symptoms...
    Pain: widespread pain, back, joint and muscle pain, headache/migraine, pain response to pressure (allodynia), temporomandibular pain, non-dermatomal parestesias, stiffness, especially in the morning, stiffness after standing, sitting or lying in the same position, swollen tissues, myoclonic twitches, muscle spasms, weakness, decreased ability to exercise.
    Sleep: sleeping problems, unrefreshing sleep, restless legs.
    Overall: cold sensitivity, increased body temperature, fever, increased perspiration, blurred vision, urinary frequency, urinary hesitancy, prostatic constriction.
    Intestinal: nausea, abdominal bloating, alternating diarrhea / constipation, functional bowel disorder, increased urge to defecate, weight fluctuations, urinary and fecal incontinence.
    ENT: nasal congestion, loss/change in taste or smell, dry mucous membranes.
    Dermatology: itching, numbness/tingling of the skin, rash, eczema, hives/welts, urticaria, generalized allergy.
    Pneumology: coughing bouts, respiratory problems, obstructive ventilatory deficits, wheezing.
    Cardiovascular: bouts of hypo and hypertension, sudden blood tension drop, irregular cardiac rhythm, palpitations and tachycardia, vasoconstriction.
    Psychological: decreased energy, decreased libido, nervousness, dizziness, anxiety, depression, severe functional impairment of activities of daily living (ADL).
    Cognition: decreased performance speed, decreased attention span, cognitive overload, impaired concentration, fibro fog, inability to multitask, short and long-term memory consolidation, lethargy, apathy.
    Does this ring a bell ?...
  9. Mwasi

    Mwasi Member


    Based in Montreal and have quit public servant position for almost 3 years, and slowly losing English, so be patient reading that post :)

    When I wake up, I feel like I had a car accident during sleeping: body is burning, everywhere. Back, legs (restless legs), arms, even hands and almost all fingers. I feel like I slept for....10 minutes? Often, I sleep for 11-12 hours but for nothing: i do not feel fresh anymore since I don't know when. Add sleeping apnea a very low energy. Social life is close to below 0: I can't go out anymore for a meal in the afternoon, energy to low, and even discuss with one friend is demanding too much to my brain, my so tired body. Return back to symptoms: I feel always and always tired and I am tired to be tired!

    I try to explain to friends that i do not feel anymore well and "confortable" in my body. I often think at suicide because I do not see the end of this very painful, sand and lack of energy in every cell of "my costume". I just want to be live with a normal energy and NO PAIN.

    What is very strange to me, it's that I have tons of projects in my head but my costume refuse to follow my head! Head is driving at 200 km and my head at...0,5 Km. What can I do?

    Thank you
  10. corinne

    corinne Member

    Toilet head...my head feels like it is a toilet...filled with sewage. My body, poisoned...sick and poisoned...chemically toxic. At my worse I feel as though I have been poisoned and am dying. When I have weakness it starts from deep within, that feeling of no reserve. And then my body feels like a wet noodle...I can't even clench my fist the weakness is so pervasive.
  11. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    Sounds like you have allodynia. If you have a crawling sensation on the skin its called formication - https://en.wikipedia.org/wiki/Formication. It can also occur in your body. It's associated with nerve damage, all allodynia is as well - http://www.ehow.com/about_5563523_crawling-sensations-associated-nerve-damage.html. It can be caused by lots of things.
    Eva Nagy likes this.
  12. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    Joints being unscrewed/wrenched apart :jawdrop:
  13. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    Thanks for letting me know. If anyone else is having this problem please PM me (click on my picture and start a conversation).
    Last edited: Aug 4, 2015
  14. It ALL rings a bell. An ENT looked at my chart and let out a shocked "oh my god" before gathering himself enough to discuss my loss of smell. I still chuckle when I think about it because it's the little things that keep us going through all this, right? :)
    Eva Nagy and Heather Campbell like this.
  15. Tami

    Tami Active Member

    This isn't new, but being filled with wet cement has always been accurate. It feels as if I'm aware of gravity's force on every inch of my body.
    My brain feels as though it's smoldering.
    My mind knows what it wants my arms and hands to do, but at times they seem disconnected and I begin to fumble, spill, and drop things.

    Thanks for being here everyone and for your input.
  16. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    I'm collating these now. We're getting lost of temperature-related sensations - burning, cold - these are all sensations associated with damaged nerves.

    Sorry you've had to deal with this from so young. Your last sentence "I felt like an elderly person when I hadn't even been eligible for my drivers license yet" - very evocative.
    Telula likes this.
  17. brenda

    brenda New Member

  18. brenda

    brenda New Member

  19. brenda

    brenda New Member

    Oops!!! Absolutely rings a bell with me. I would not wish this illness on anyone.
  20. Mwasi

    Mwasi Member

    Me again.
    2 days ago, I met my sister who now lives in Australia. She was not aware of my health situation and explained to her how I feel every day. Remember when you helped your friends to move home? The day after, all muscles & joints are extremely painful from head to toes. But "the moving effect" is there every single day. Exhaustion is deeper along the days passing and I can measure how I am loosing capabilities with time. 2 years ago, I was able to walk likely more than I do now. I use to ask for observation from my friends and family as I noticed my memory is really in bad shape and cognitive in general.

    Rhumatologist use to ask which one is worst: pain or exhaustion? It's exactly on the same level: hard to live with and equally disturbing.
    Merry and brenda like this.