Hi I'm Susan also. My first time posting.Dear Susan,
I had that procedure done in early December (about 4 1/2 months ago) by a doctor who is located in Miami. I decided to do it because one of the other patients at Dr Klimas' clinic had reported good results from it. I knew it was a shot in the dark, so to speak, since there was no extensive research on this procedure and its results. My reasoning was that since it was my own stem cells, I was unlikely to have a bad reaction, and there were no other potential treatments on the near horizon that might be helpful.
The procedure to "harvest" my stem cells from abdominal fat felt really weird, but was not particularly painful. Getting them re-infused after they were separated from the fat cells and treated to activate them was nothing more than having an IV drip for a little while.
I'm sorry to report, however, that I haven't felt any improvement since then. I'm over 60 and have had this illness for a long time. From what I've heard, the longer you've had it the less likely you are to recover.
Having the procedure done in the U.S. meant there was no "multiplying" of the harvested stem cells, as I have read they do with offshore stem cell clinics. I don't know if that makes a difference. I think stem cell therapy is promising, but still in the very early stages. It's still an experimental procedure, and definitely NOT covered by health insurance. If you can afford it, and are interested in trying it, read everything you can about it and then make your own decision. Just know it's not a sure bet.
I haven't had any particular treatments like that. I've had this CFS or Seids for 40 years. It's been a handicap for sure.
I'm 71 and live in So California.
Is there a place for new members to post?