@Who Me? Hi! I am new here, but not new to this disease.
I just started LDN after years of unrelenting body wide pain. 8 years of narcotics. ( tried lots of herbal and other treatment and narcotics were the only thing that took my pain down a few notches) went off those pills and am on LDN with rather miraculous results. I almost don't believe it!!! It has changed my PEM and I still have the "fatigue" all over if I get up and try to do a few things...but the suffering has lessened a bit. Do you also use LDN? It is so nice some leaders are helping us....next..for the cure!
I worked with LDN probably 10 yrs ago or so and the FIRST dose did wonders, I was like a new person. Subsequent doses did NOTHING. I never got beyond a very low dose, forget what the dose was. I think back then the goal was 4.5mg and I never got even close to that. Gave me horrible constipation too.
I have read and known many MS patients take it and get good relief for MS, I attempted to get my sister to try it and she didn't. Sadly, she passed late last year at 68, took all the drugs the docs gave her.
If it's working for some, keep using it.