my daughter took her first dose injection and she did not respond well .. in fact it exacerbated her symptoms… it did not go well for her… very frustrated and discouraged… back at square 1..she also has same diagnosis… we were thinking there might be issues with her thymus gland which no one has thought to check … she has a lot of symptoms that correlates to issues with the thymus…Has anyone tried Alpha Thymosin 1 and did they have a favorable outcome? It did help my loved one diagnosed with ME/CFS - CFIDS. Also, POTS and MCAS. It appearas it was recently banned by FDA. i want to start a petition.
I am not sure what age this starts in but has anyone tested her for MG Myasthenia Gravis? It can be involved in the thymus.My daughter
my daughter took her first dose injection and she did not respond well .. in fact it exacerbated her symptoms… it did not go well for her… very frustrated and discouraged… back at square 1..she also has same diagnosis… we were thinking there might be issues with her thymus gland which no one has thought to check … she has a lot of symptoms that correlates to issues with the thymus…
I used Proboost, which is Thymic Protein A and did have success with it. It's not an instant cure, or at least it wasn't in my case but it helped a lot until I found that my issues were thiamine/riboflavin/amino acid related. I'm not sure of the difference between the two.
I didn't do tests. You can do the labs but it's cheaper to just do a trial with the supplements. You should know within a week if it's going to help. I found the info here : https://www.healthrising.org/blog/2...gia-mecfs-found-early-reports-spark-interest/ My diet is/was OK but it could be a genetic/methylation issue of some sort. I took 150 mg of each 2 x day, and on day 3 my severe fatigue was gone. I decrease down to 100-200mg periodically and am ok for several days and then started feeling more tired again. The amino acids did the same thing for my PEM: https://www.healthrising.org/blog/2...-pem-chronic-fatigue-fibromyalgia-long-covid/TAllen:, what tests did you do on the thiamine/amino acid/riboflavin? Was it a lab?
I wanted to thank you for the info on CSF leaks. I went from ME/CCFS to MCAS (getting better) to cranial CSF now. Your previous posts helped a lot. Thanks!TAllen, ok thank you very much appreciated lots I will read all of this
I didn't do tests. You can do the labs but it's cheaper to just do a trial with the supplements. You should know within a week if it's going to help. I found the info here : https://www.healthrising.org/blog/2...gia-mecfs-found-early-reports-spark-interest/ My diet is/was OK but it could be a genetic/methylation issue of some sort. I took 150 mg of each 2 x day, and on day 3 my severe fatigue was gone. I decrease down to 100-200mg periodically and am ok for several days and then started feeling more tired again. The amino acids did the same thing for my PEM: https://www.healthrising.org/blog/2...-pem-chronic-fatigue-fibromyalgia-long-covid/
Could be due to a decrease in digestive enzymes do to age or other genetic factors but I started taking an "Essenti
- Branched-chain amino acids (BCAA) (5 grams) – This study found that BCAA reduces lactate levels produced by exercise (and this study found that by inhibiting the L-system transporter, BCAA suppressed the uptake of tryptophan, thereby alleviating fatigue).
most welcome glad it helped youI wanted to thank you for the info on CSF leaks. I went from ME/CCFS to MCAS (getting better) to cranial CSF now. Your previous posts helped a lot. Thanks!
al Amino Acid Complex" and my PEM was better within days as well. It doesn't work
for everyone (genetics likely) but I hope it works for you!
It is still available to buy online, I think it was only banned during shortages due to covid. I wanted to take this myself but a bit put off by the protocol of injections so I have just got an oral product called Thymogen Alpha-1 that is a combination of 2 peptides Alpha Thymosin 1 and Vilon. Haven't started yet.Has anyone tried Alpha Thymosin 1 and did they have a favorable outcome? It did help my loved one diagnosed with ME/CFS - CFIDS. Also, POTS and MCAS. It appearas it was recently banned by FDA. i want to start a petition.
TAllen, I was thinking about the thiamine I heard it could be related to is it non-alcoholic Fatty Liver Disease. I have a friend his thiamine was so low he was drinking too much alcohol they put him on some.Hi TAllen, what tests did you do on the thiamine/amino acid/riboflavin? The brand you bought on Proboost is this the one with 17 Trillion cultures? Was it a lab that did your test levels??
How well are you now TAllen?I used Proboost, which is Thymic Protein A and did have success with it. It's not an instant cure, or at least it wasn't in my case but it helped a lot until I found that my issues were thiamine/riboflavin/amino acid related. I'm not sure of the difference between the two.
Standard testing from lab. Proboost comes in 4mcg packets. I need more thiamine genetically evidently. Tested through Genomic Insight showed I have several genes that predispose me to CFS as well. I checked my results again after Cort's latest post on serotonin/tryptophan and I suspect my serotonin is low and genetically I don't breakdown tryptophan properly which causes a lot of problems. It's hard to say about liver issues because supposedly standard liver tests don't show most issues.Hi TAllen, what tests did you do on the thiamine/amino acid/riboflavin? The brand you bought on Proboost is this the one with 17 Trillion cultures? Was it a lab that did your test levels??
ok thanks, I am now looking into my left enlarged kidney for compression above the left one it may also explain any abnormal tests like blood levels etc.hopefully this opens up below NUTCRACKER SYNDROME she was dismissed by many.Standard testing from lab. Proboost comes in 4mcg packets. I need more thiamine genetically evidently. Tested through Genomic Insight showed I have several genes that predispose me to CFS as well. I checked my results again after Cort's latest post on serotonin/tryptophan and I suspect my serotonin is low and genetically I don't breakdown tryptophan properly which causes a lot of problems. It's hard to say about liver issues because supposedly standard liver tests don't show most issues.