TVAM (Transvascular Autonomic Modulation)

[mymichelina]

TVAM (Transvascular Autonomic Modulation).....performed at Autonomic Specialists, an autonomic diagnosis and treatment center located in Newport Beach, CA.

Has anyone heard of this? tried it? know anyone who has? I read a blurb about Yolanda Hadid (from Housewives of Orange County) and ex wife of David Foster and Mohamed Hadid ($$). She has been suffering from Lyme Disease and has discussed her treatments and her suffering on shows such as Dr Oz and others.

I live in Southern California and have been ill/disabled for 14 years with ME/CFS and many other auto-immune and autonomic issues. I was honored to be 1 of the 20 patients chosen for the initial phase 1 of the Severely Ill Big Data Study through Dr. Ronald Davis, Stanford Geneticist whose son suffers terribly from these unforgiving health issues. The Open Medicine Foundation is handling the study. Yet it is not a treatment plan. This is why I am desperate looking for help, yet I know there are a lot of nonsense treatments and people out in this world ready to prey on people like us.

Looking forward to some responses. Thank you in advance!

 

[Who Me?]

Hi. Welcome @mymichelina Can you please take the bolding off everything? It's too much for my brain.

@Cort

 

[mymichelina]

Hi. Welcome @mymichelina Can you please take the bolding off everything? It's too much for my brain.

@Cort

So sorry Who Me?
I did not even realize I had it set any particular way.

 

[Who Me?]

@mymichelina I'm in so Cal too. Is it that Dr. Arata? I looked into that. I just found it odd that a surgery can cure some many things. It just didn't 'make sense to me. And if it works why is no one hearing about it?

Dr John Chia is in Torrance, I see an NP in OC who is pretty helpful. She gets how sick I am, is open to a lot of stuff. She is not a CFSME specialist but since I can't travel she works for me.

Dr Peterson is in Nevada. Dr Montoya in Stanford.

I think someone here once said, depending on what has caused your disease is going to determine who you should see based on their treatment protocol.

 

[mymichelina]

Yes it is Dr Arata....
I too find it strange that one procedure can help so much. That is why I reached out here to see if anyone was familiar with it. There are so many people just hoping to rip off us who suffer so much.
I never heard of a way to determine what caused my illness. I am in OC seeing many docs for individual issues. I have been disabled now for 14 years. Dr Montoya is part of the study I am part of.
I hope you are feeling improvement with your NP.
Thanks for responding.

m
(sorry for delay, I thought I had sent it)

 

[Remy]

TVAM (Transvascular Autonomic Modulation).....performed at Autonomic Specialists, an autonomic diagnosis and treatment center located in Newport Beach, CA.

Has anyone heard of this? tried it? know anyone who has? I read a blurb about Yolanda Hadid (from Housewives of Orange County) and ex wife of David Foster and Mohamed Hadid ($$). She has been suffering from Lyme Disease and has discussed her treatments and her suffering on shows such as Dr Oz and others.

I live in Southern California and have been ill/disabled for 14 years with ME/CFS and many other auto-immune and autonomic issues. I was honored to be 1 of the 20 patients chosen for the initial phase 1 of the Severely Ill Big Data Study through Dr. Ronald Davis, Stanford Geneticist whose son suffers terribly from these unforgiving health issues. The Open Medicine Foundation is handling the study. Yet it is not a treatment plan. This is why I am desperate looking for help, yet I know there are a lot of nonsense treatments and people out in this world ready to prey on people like us.

Looking forward to some responses. Thank you in advance!

I don't think many people have had this done in our population. I've been hanging around these boards for a while and the first time I heard of it was last year. Someone I know was considering it, but ultimately decided against it. I'm not sure why.

So unfortunately, I'm not sure too many people will respond to this thread but I'll be watching those who do decide to try it with great interest! I think it's legit; whether or not it works for any one person, well, I'm sure not even they can predict, unfortunately.

 

[mymichelina]

I don't think many people have had this done in our population. I've been hanging around these boards for a while and the first time I heard of it was last year. Someone I know was considering it, but ultimately decided against it. I'm not sure why.

So unfortunately, I'm not sure too many people will respond to this thread but I'll be watching those who do decide to try it with great interest! I think it's legit; whether or not it works for any one person, well, I'm sure not even they can predict, unfortunately.

Remy,
Thank you so much for responding. Such frustration with all the so called "cures" and the possible real help available! All the while having very little minutes in my life to even read about them~ reading literally puts me to sleep. And the pain...can't forget that. I hope you are in a better place than I.
Hope~
mymichelina

 

[Issie]

If this is CCSVI - or declogging of jugular veins - I know about it. We talked about it a good bit in connection to POTS.

My doc has a special test done to check to see if the veins are clogged. My insurance wouldn't pay for it so I didn't do it. They have found with Protomyzoa Rehumatica it clogs veins. There was a study released in London of a heart bypass and the clogs they took out of the veins was full of this protozoa and the biofilms they formed to protect themselves. My doc wanted me to be really strict on my vegan diet and I was treated for over 3 years for this and Lyme and coinfections. He said if my POTS didn't get better, we would need to look into this more. The diet did made a huge difference and I never pursued it. I still have POTS and the protozoa but I'm much better than I was. Doing his protocol made a difference. His name is Dr Stephen Fry and the doc who discovered Protomyzoa Rehumatica.

Issie