US Action Working Group Queries NIH on Clinical Center Study

[Cort]

The US Action Working Group - a powerful group of ME/CFS advocates that recently came together to build a strong voice for change - send a list of question to the NIH regarding the Clinical Center study. It's a list that demonstrates the commitment and expertise found in this group. I am part of the group but did not put together the list. Looking at it I'm astonished at its breadth!

It's attached to this post.

 

[weyland]

Hits all the major concerns quite well except the active infection exclusion.

Patient selection will make or break this study.

 

[Hello!]

Excellent.

 

[Cort]

Really well done I say! That's Mary Dimmock and some other going through it with a fine-toothed comb.