Issie
Well-Known Member
It has come to my attention that the website has been compromised and that my post on both the Forum and Blog site, what I have said and talked about and even my writing style has been changed. As of today July 18, 2021.....I will no longer participate in the forum or the blogs. A good bit of what I previously wrote has been altered and is not how I wrote it or phrased it. I hope to not let my life's work, decades of it, be lost, tainted or claimed as someone else's.
My goal was to help others with the multiple illnesses that seem very interconnected....ME/CFS, FMS, EDS, MCAS, Autoimmune dysfunction, inflammation, etc. My hypothesis includes that there are Autoimmune issues and inflammation as part of the core (pick your order). And there are issues in the calcium channels and with glutamate, dopamine, oxytocin, histamine. And problems in the diet with oxylates and gluten, nightshade, dairy......for a good many of us. There have been many things I have written about since I have been here, (I was one of the first ones on this forum.)
My moto and sort of trademark saying has always been.....we have to find the WHYS first. The symptoms are the lessor of two evils and very likely compensations, trying to save us. I feel we are all on a very individual journey and with different genes and many of them very "wonky", what will work for me may not work for you. We may not can "fix" it, but we can sure put a beautiful "Purple Bandaid ?" on it.
Trying to find the WHYS to not only try to help myself, but help others has been my life and my goal for decades with my own chronic illnesses. Most of my best ideas were here and now they have been changed. Others have been successful to incorporate them into their own hypothesis and call them theirs. I never expected that I would be noticed for my ideas or contributions and that was not my goal. My goal was to get the WHYS and try to find some solutions to improve quality of life. I hope that can and will still happen, even if "Issie" is not attached to it.
I sure have HOPE everyone can find their "Purple Bandaid ? " and feel better and have a measure of quality of life in the chronic bodies we find ourselves. We didn't ask for the cards we got handed, but we can make the best of them. Everyone, PLEASE, try to find an hour of JOY every day. Go outside and watch a Butterfly and feel the Sunshine, take a picture of a beautiful flower.
I WILL BE SCREEN SHOT AND DOWNLOADING THIS AND HOPE IT DOESN'T GET CHANGED. ??
My goal was to help others with the multiple illnesses that seem very interconnected....ME/CFS, FMS, EDS, MCAS, Autoimmune dysfunction, inflammation, etc. My hypothesis includes that there are Autoimmune issues and inflammation as part of the core (pick your order). And there are issues in the calcium channels and with glutamate, dopamine, oxytocin, histamine. And problems in the diet with oxylates and gluten, nightshade, dairy......for a good many of us. There have been many things I have written about since I have been here, (I was one of the first ones on this forum.)
My moto and sort of trademark saying has always been.....we have to find the WHYS first. The symptoms are the lessor of two evils and very likely compensations, trying to save us. I feel we are all on a very individual journey and with different genes and many of them very "wonky", what will work for me may not work for you. We may not can "fix" it, but we can sure put a beautiful "Purple Bandaid ?" on it.
Trying to find the WHYS to not only try to help myself, but help others has been my life and my goal for decades with my own chronic illnesses. Most of my best ideas were here and now they have been changed. Others have been successful to incorporate them into their own hypothesis and call them theirs. I never expected that I would be noticed for my ideas or contributions and that was not my goal. My goal was to get the WHYS and try to find some solutions to improve quality of life. I hope that can and will still happen, even if "Issie" is not attached to it.
I sure have HOPE everyone can find their "Purple Bandaid ? " and feel better and have a measure of quality of life in the chronic bodies we find ourselves. We didn't ask for the cards we got handed, but we can make the best of them. Everyone, PLEASE, try to find an hour of JOY every day. Go outside and watch a Butterfly and feel the Sunshine, take a picture of a beautiful flower.
I WILL BE SCREEN SHOT AND DOWNLOADING THIS AND HOPE IT DOESN'T GET CHANGED. ??
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