Hi Sarah,Facebook support groups can be good for local knowledge. And some support organisations keep a list of providers.
Which country do you live in?
I have - after a 10 year duration of undiagnosed illness - been lucky to find and be under the care of an exceptional Infectious Disease Immunology in NY who diagnosed me with ME/CFS as well as reactivated EBV and HHV-6 as well as MCAS and treated me from a Bell's score of 20 to presently 80. He's very busy as one would imagine however is extremely proactive with regiments and readily available - I know the above posts are somewhat old however am happy to recommend as does offer telemedicine.Where can I find a treating MECFS provider?