Not dead yet!
Well-Known Member
In this article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371151/
There's a good description of "post viral fatigue" which shows the article author's argument for CBT in PVF. It's hard not to take offense. It was long ago, but those ideas have lasted for 26 years in some places. I do as much as I feel safe doing, and I keep my circulation up with heated pads and such. It really is torture for me not to exercise much, so it's insulting to have these eggheads thinking about it in theory and deciding I must have "given up" on myself. No, I kept re-injuring myself, and yes I do some exercise when I feel it's safe. I'm not sure I need "therapy" to figure that out. I think what we all need is an effective treatment.
Thankfully, I had a good visit with my doctor yesterday, about CFS, and we're on the same page. He's been a doctor for long enough (decades) to be comfortable with "not knowing" everything. So I have a self care plan and a plan to see some local alternative practitioners and I'm just so glad I can talk with him openly about it.
There's a good description of "post viral fatigue" which shows the article author's argument for CBT in PVF. It's hard not to take offense. It was long ago, but those ideas have lasted for 26 years in some places. I do as much as I feel safe doing, and I keep my circulation up with heated pads and such. It really is torture for me not to exercise much, so it's insulting to have these eggheads thinking about it in theory and deciding I must have "given up" on myself. No, I kept re-injuring myself, and yes I do some exercise when I feel it's safe. I'm not sure I need "therapy" to figure that out. I think what we all need is an effective treatment.
Thankfully, I had a good visit with my doctor yesterday, about CFS, and we're on the same page. He's been a doctor for long enough (decades) to be comfortable with "not knowing" everything. So I have a self care plan and a plan to see some local alternative practitioners and I'm just so glad I can talk with him openly about it.
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
