Search results
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Reduced cardiac volumes in CFS not result of deconditioning
This is research conducted by Julia Newton and others and published in the BMJ. http://openheart.bmj.com/content/3/1/e000381.long- Merry
- Thread
- Replies: 2
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Help Ryan Prior win $50K for ME/CFS education
I've gone through the first three pages of twelve of the contestants, and few have over 1,000 votes. Many have less than ten votes. That Devoted Barn has nearly 40,000 makes me wonder if all the votes are legitimate.- Merry
- Post #39
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
Online voting counts for 20%. Who goes to finalist judging is not clear to me. "The top 30." The top 30 in online voting, I guess. One $50,000 prize will be awarded and six $5,000 prizes.- Merry
- Post #38
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #37
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
Thanks for the link. I would feel bad making fun of Melissa Z., single mother of five kids, but some parts of her story made me raise my eyebrows. Mainly what I'm thinking: Her poor kids.- Merry
- Post #36
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
Who are these Devotees of The Barn? I'm frightened! A panel of judges awards prizes (or is there only one prize?). I'll have to read the rules again to find out who gets to be considered by the panel.- Merry
- Post #34
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #32
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #31
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #30
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #29
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #28
- Forum: Advocacy, Contests and Events
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Advocacy Effort Please respond to NIH Request for Information by 24 June
This is what I wrote: Dear Working Group Members: I am a 64 year old ME/CFS patient who has been ill for 48 years. My mother, although never officially diagnosed with ME/CFS, was also ill, possibly as early as her teens in the 1940s. I am sorry to say that I am not well enough, or...- Merry
- Post #4
- Forum: Advocacy, Contests and Events
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Take survey to respond to NIH request for information
MEAction is conducting a survey in response to the request for information (RFI) from the NIH. They will submit the results to the NIH. You have until midnight (EST) Wednesday, the 22nd of June to take the survey.- Merry
- Thread
- Replies: 0
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #27
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
bump- Merry
- Post #26
- Forum: Advocacy, Contests and Events
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Help Ryan Prior win $50K for ME/CFS education
The Facebook ME/CFS fundraising administrators have set up a closed group for this contest. Ask to join this group if you want a daily reminder to vote: https://www.facebook.com/groups/249243832117548/- Merry
- Post #25
- Forum: Advocacy, Contests and Events
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Advocacy Effort Please respond to NIH Request for Information by 24 June
The National Institutes of Health has issued a Request for Information titled "Soliciting Input for New Research Strategies for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS." This is the email address: MECFSRFI@mail.nih.gov . The deadline is the 24th of June. As far as I know...- Merry
- Thread
- Replies: 5
- Forum: Advocacy, Contests and Events
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