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Fibromyalgia now considered as a lifelong central nervous system disorder
I can trace possible symptoms decades back before getting suddenly sick four years ago. Things like IBS, RLS, GERD, plantar fasciitis, and, maybe most importantly, chronic energy shortages that I was able to overcome only by relying on stress energy (which seems to have burned out something in...- Paw
- Post #9
- Forum: ME/CFS and FM News
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2 distinct subclusters in Fibromyalgia?
This study might be helpful in the continuing process of enlightening more healthcare providers (so they can better target treatment strategies), but don't you think the binary explanation is still overly simplistic? Wouldn't "a continuum" serve as a better description? Of course I'm no...- Paw
- Post #2
- Forum: FIbromyalgia and Pain Research
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Resource PLX3397: let's kill off the microglia!
Re minocycline: I've noticed it's cheaply available through overseas pharmacies, but I've been wary of trying it, not knowing the risk of unintended consequences. But there do seem to be solid studies supporting its positive effects on brain inflammation. Re misdiagnosis of MS: As this is...- Paw
- Post #14
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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What about DMT and/or Ayahuasca?
How about a regimen of LDDMT (low-dose DMT) every night?! It's all very intriguing. Fortunately, research into psychedelics has been picking up again in recent years (or so I've read) -- after being squelched for a few decades during the drug wars. I guess it's possible that those with ME...- Paw
- Post #4
- Forum: General Discussion
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Review Clonidine (Kataprex, Nexiclone, Duriclone)
My cardiologist gave me clonidine. It was very effective for sleep, RLS, and hypertension. Unfortunately .1mg at night left me feeling extremely sleepy the entire following day -- like Dorothy et al in the poppy fields kind of sleepy. Half doses were more manageable but they lacked the desired...- Paw
- Post #6
- Forum: Dysautonomia - Problems Standing, POTS, NMH, etc
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Zoplicone / Eszopiclone (Lunesta)
I use Lunesta fairly regularly (4-5 nights per week). It doesn't leave me feeling druggy/depersonalized the next day, as Ambien does when taken more than a couple nights in a row. There may be some tolerance, but I stick with the original dose (3mg) and it provides a decent sleep. Still some...- Paw
- Post #3
- Forum: Sleeping Better
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Sublingual Cyclobenzaprine found to improve Sleep in Fibromyalgia
I've been trying 2.5 mg sublingually for a few weeks now. I might be sleeping more soundly, and I think it's eased my RLS. I had been going through an unusually long ME flair-up, but recently have been on the upswing. Hard to say the cyclo is responsible since I've been making some other changes...- Paw
- Post #4
- Forum: FIbromyalgia and Pain Research
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Resource PLX3397: let's kill off the microglia!
Wondering if you've tried minocycline. Would that make sense (and be cheaper)?- Paw
- Post #9
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Novel Fibromyalgia Sleep/Pain Drug Moves Forward
Cort, I get confused with differentiating between a receptor down-regulator and a reuptake inhibitor, but maybe they amount to the same thing? The flexeril is described as a down-regulator, while the others you list are described as reuptake inhibitors. I've always assumed inhibition builds up...- Paw
- Post #10
- Forum: ME/CFS and FM News
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Novel Fibromyalgia Sleep/Pain Drug Moves Forward
Yes, thanks VLynx. You answered my first question, and I'll give it a try. My second question has to do with my Cymbalta prescription (the only drug so far that significantly reduced my chronic neuropathic burning). I had always assumed I should take it at night for its serotonin, but the...- Paw
- Post #7
- Forum: ME/CFS and FM News
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Side effects after taking Lyrica for years?
You're probably having a particularly rough time trying to get off that particular combo. I don't think the difficulties of Lyrica withdrawal (or gabapentin for that matter) is as well known as Cymbalta, but it can be pretty bad. Effexor, another SNRI like Cymbalta, is also known for its... -
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Suggestions & experiences with best Fibro mattresses
Hi Dee, I went through this about a year ago. I would not have thought memory foam would work for me, but I kept considering it because I kept running across one statistic: the consumer satisfaction rate for memory foam was consistently higher than for any other type of mattress -- and by wide...- Paw
- Post #6
- Forum: Sleeping Better
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Savella (milnacipran)
I hadn't known that. I assume that's longer than before? Was this one of the side deals necessary to get the industry's support?- Paw
- Post #6
- Forum: Relieving Pain
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Savella (milnacipran)
Unfortunately Savella -- one of the few norepinephrine drugs to bypass the dopamine stage -- is not yet available in generic in the US. Nor is Strattera, which solely agonizes norepinephrine (as opposed to Wellburtin, which works on norepinephrine and dopamine). Odd, because there are various...- Paw
- Post #4
- Forum: Relieving Pain
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Major Trial for Fibromyalgia Drug Targets Sleep Problems
I'm going to try it. Especially since it might help with TMJ -- and I'll bet my sleep issues are largely because of my autonomic neuropathy, which the cyclobenzaprine is supposed to calm. If it helps my RLS and aching joints, all the better. I'll need to monitor its interaction with Cymbalta...- Paw
- Post #14
- Forum: Relieving Pain
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The Best Diet for a Severe Case of ME/CFS?
When I'm pessimistic, this question feels kind of like contemplating whether its better to use soft or hard water on your house that's burning down. I've done a lot of experimenting with different diets, and it only maybe affects my well-being a little at the margins. It doesn't touch the raging...- Paw
- Post #7
- Forum: Diet and Improving Your Gut
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Intermittent Fasting
For me, it's probably worth investigating. Last summer I fasted longer than required before an endoscopy and colonoscopy. As a result my long-term IBS was greatly improved for at least a month. (My neurologist attributes the IBS to small-fiber neuropathy.)- Paw
- Post #6
- Forum: Diet and Improving Your Gut
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Major Report Says SSRI's Don't Work For Fibromyalgia
I'm only on my second day of Wellbutrin (and I'm cutting my duloxetine from 90 to 60 at night) -- but the first day's results were encouraging. Sustained energy most of the day. But you know how these things go: consistent improvements over the long haul are rare. Still I'm hopeful. I suspect...- Paw
- Post #5
- Forum: Relieving Pain
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Major Report Says SSRI's Don't Work For Fibromyalgia
I may be on a wild goose chase, but I've been pursuing a pet theory that it's the "N" part of my SNRI (Cymbalta) that is relieving my worst FM pain. As I research, and also experiment with supplements that can separately impact serotonin and norepinephrine, I'm interested in possibly...- Paw
- Post #3
- Forum: Relieving Pain
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Imitrex (Sumatriptan)
Well this is embarrassing: I can't figure out how to send a PM! Yes, thanks, I would like to hear more of your specific supplements. For instance, I find phenibut useful and pleasurable -- and would rely on it more if it didn't have such a reputation for addiction and quick tolerance build-up...- Paw
- Post #11
- Forum: Relieving Pain
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