Search results
-
P
Imitrex (Sumatriptan)
Thanks for the passionflower tip. I'll pick some up ASAP. For me, the more the merrier when it comes to sleep tools. Rotating through various options raises my chances of getting a half-way mediocre sleep. In addition to various supplements, I have prescriptions for gabapentin, clonazepam...- Paw
- Post #9
- Forum: Relieving Pain
-
P
Supplement Magnesium Plus Malic Acid is the Key?
Just a thought Tiger: you might check out dicaffeine malate (I haven't yet) -- a synergized combo of stable caffeine and malic acid. -
P
Dry Mouth / Puffy eyes
You've probably already thought through all the meds and supplements you take? Many are notorious for dry mouth (and mouth sores). And you've probably already tried to mitigate with Biotene? Kind of helpful.- Paw
- Post #2
- Forum: General Discussion
-
P
Imitrex (Sumatriptan)
Yes, I get the generic Focalin, cheap with no prior authorization (dexmethylphenidate). It's pretty subtle, but so far I'm encouraged by extra reserves of energy when I need them. I'm still needing to lie down regularly with fairly deep fatigue, but it's been more like a meditation, without...- Paw
- Post #7
- Forum: Relieving Pain
-
P
Imitrex (Sumatriptan)
Yes, thanks Minx, I've been getting supplements (including tianeptine) from PowderCity with good results. It's quite the learning curve to figure out what stacks well together -- and what may interact negatively (or positively) with other meds. The temptation is to try a whole bunch of stuff...- Paw
- Post #5
- Forum: Relieving Pain
-
P
Imitrex (Sumatriptan)
Speaking of... do you (or does anyone else) have experience with tianeptine? I get conflicting info on its serotonin impact. Apparently it used to be considered an SSRE (encouraging the reuptake of serotonin), yet was somehow complementary to, say, SSRIs (serotonin reuptake inhibitors). I'm...- Paw
- Post #2
- Forum: Relieving Pain
-
P
Poll How Well Informed Was the Last Doctor You Saw?
I have a pragmatic question, as I prepare for a 15-minute visit with a possibly new PCP this week. (My current PCP does not scoff openly, but acts extremely uninterested whenever the topic of ME/FM comes up. She's very quick to refer me to specialists so that she doesn't have to think about it... -
P
What Were Your First Symptoms of ME/CFS?
Interesting. For what it's worth, my very earliest possible symptom was chronic IBS, going back maybe 20 years -- and I did have an appendectomy (in 1980). Also, a curiosity: for at least 20 years I've experienced a gravel-like resistance in my neck whenever I turn my head. I can hear the... -
P
Burning Pain - Does Anyone Else Experience That?
Ha. (Still, sorry about your vitiligo.) Another irony I'm sure others here are familiar with: after learning to manage symptoms, you can prepare yourself for certain stressors -- like doctor appointments. So, after scheduling an appointment around my sleep schedule, then loading up on caffeine... -
P
Burning Pain - Does Anyone Else Experience That?
Wow, Issie, your dad had a rough road. I'd never heard of reducing testosterone for such purposes. Not that I'm in the same boat, but, in these earlier stages of my own adventure, it often feels like I get bad reactions to everything and anything that boosts energy and vitality. Weird. Yes, I... -
P
Burning Pain - Does Anyone Else Experience That?
Yes, and I do have small-fiber neuropathy. Burning is one of my worst manifestations. When it's bad is when I'm most curled-up as if I have the flu (combined with extreme fatigue, migraine, and myalgias). Sometimes I've wondered if males are more prone to burning, since males are supposedly less... -
P
Fibromyalgia Leptin Big in ME/CFS AND Fibromyalgia?
I'm wondering if leptin markers are part of standard metabolic panels, and, if so, how they are identified. I'm curious about looking back on my past tests (and I just had a comprehensive panel this morning).- Paw
- Post #6
- Forum: FIbromyalgia and Pain Research
-
P
Genital Herpes Reactivates while on AV's
You've got me thinking I should see if my rheumatologist can have me tested for herpes. I'm always on the lookout in my rear-view mirror for what might have led me to chronic illness. Now I'm remembering a long-term relationship with someone who had genital herpes. This was way back when...- Paw
- Post #2
- Forum: Health News
-
P
Medical Marijuana
Yeah, it's not legal everywhere in the US either. Some of us, though, have been willing to live with the risks after seeing its dramatic impact on chronic illness. We seem to be moving gradually toward more universal legality here. It would be great to feel more free to openly discuss this...- Paw
- Post #3
- Forum: Relieving Pain
-
P
The Rise of the Virtual Doctor Visit
Yeah, now that most doctors use some sort of online communication hub around here, it's possible to follow up with a line of questioning that used to be impossible while playing phone tag. I see a handful of specialists, and they each respond differently to the new technology. My PCP is...- Paw
- Post #2
- Forum: Health News
-
P
Fibromyalgia If you have Fibromyalgia - You Probably Have Another Disorder as Well
Interesting. Although I'd like to be able to compare the numbers to those of general-population 59-year-olds. (Me, I do match most of the ailments listed.) It never occurred to me that my restless leg syndrome -- which has been pretty severe for more than ten years -- was considered a "mental...- Paw
- Post #2
- Forum: FIbromyalgia and Pain Research
-
P
Modafinil
That's possible Minx. Although my reactions were consistent with the "possibly severe side effects" listed with Nuvigil. I read that you've tried Focalin? I was thinking of trying it, using it more as needed (sort of like caffeine) instead of as maintenance drug. Something tells me I would...- Paw
- Post #22
- Forum: Other Research
-
P
Modafinil
Just FYI, to put a period on my Nuvigil experiment... It only lasted about ten days. Started off promising, but side effects increased daily, until my neurologist told me to stop taking it (went to the urgent care to be sure mouth sores were not deadly). Most discouraging was that, in...- Paw
- Post #20
- Forum: Other Research
-
P
What Were Your First Symptoms of ME/CFS?
Thanks for the link, Penelope. Interesting thread. I too have long felt that normal forms of energy were not available to me, so that the only way I was getting things done was with bursts of unsustainable, harsh energy. Not unlike chronically substituting caffeine for sleep. When all my... -
P
Hot Canadian Researcher Examining Exercise in ME/CFS
Yeah, I guess he's pretty hot, but I'm mostly interested in his research credentials. I have been wondering about something my neurologist told me regarding exercise. He's been trying to steer me away from, say, long brisk walks, which I really enjoy, and toward shorter cardio workouts, which...- Paw
- Post #2
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
Support Our Work
Health Rising’s Quickie 2025 Summer Donation Drive Has Begun!
HEALTH RISING IS NOT A 501 (c) 3 NON-PROFIT
Get Our Free ME/CFS and FM Blog!
Forum Tips
Shopping on Amazon.com For HR
Latest Resources
-
Caitlan's 1-2 punch works with her severe ME/CFSLow dose naltrexone and neuroplasticity power Caitlan's recovery- Cort
- Updated:
-
New idea to alleviate many complaintsExtreme improvement after respiratory therapy in young patient with ME/CFS, fibromyalgia, Long Covid- Norbert
- Updated:
-
Drugs Get Mathew Most of the Way and Hyperbaric Oxygen Does the RestOne doctor got Mathew part of the way and another got him all th way- Cort
- Updated:
-
-
Lucie's Surprisingly Simple Road to RecoveryYears of searching results in a simple and inexpensive pathway to recovery- Cort
- Updated:
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
