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Who doesn't benefit from acetylcholine supplements?
I have an update on my experiences with acetylcholine, which might interest those with FM and neuropathies. A few months ago my cardiologist allowed me to experiment with Mestinon (pyridostigmine), which helps to bathe the nerve endings at the muscles in acetylcholine -- so this was the direct...- Paw
- Post #43
- Forum: Health News
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Symptom concern
I deal with "brain zaps" too. The first place I'd look is to make sure it's not a sign of imbalanced meds. Brain zaps are a common side-effect of reducing anti-depressant doses (especially SNRIs). But I have found changes in any GABA regulating drug can trigger them. Sometimes I can't determine...- Paw
- Post #2
- Forum: General Discussion
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Is it a common symptom to stop breathing?
You make sense -- and it seems to me, really, the question isn't whether there's a focused force, but the extent of it. Hip and you have pointed me toward a lot of reading, which I'll get started on. Thanks. I have many reasons to suspect this syndrome might apply to me, including long-term... -
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Fibromyalgia Novel Pain Treatments
Steve, I feel for you. And for me. I'm a bit younger, but as I watch pain find creative new avenues in my body year after year it seems I'm headed your way. For now, I still get relief lying down -- maybe in the 40% range. But then comes the swirling neuropathies and burning.... Anyway, I too...- Paw
- Post #16
- Forum: Relieving Pain
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Is it a common symptom to stop breathing?
My tendency is similar -- though not as severe. I'll get it zoning out, or focusing on something as well. Lots of shallow breathing too. I have no idea if it's linked to this disease, but it sure don't seem helpful! Do you have any autonomic neuropathies? I have apneas while sleeping (and use... -
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Fibromyalgia Novel Pain Treatments
Steve that sounds exhausting. Bet you'll be recovering for some time. Maybe a lot of us here tend to keep our heads down while managing our cycles -- since it can be counter-productive to keep pouncing on every shiny object. I do keep my eyes open for new things to learn and try, but, frankly...- Paw
- Post #13
- Forum: Relieving Pain
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Melatonin and Gerd Relief
Wow, that's fascinating, thanks. A great read for anyone who wants to better understand their GERD. I would not have imagined any treatment more efficient than PPIs (such as omeprezole). The article also gives a little insight into why breathing exercises might be helpful. When I get an...- Paw
- Post #2
- Forum: General Discussion
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Naviaux, the ME/CFS Autism Connection and a Treatment Success - A New Website Opens
Yes, nice. Subscribed. High-dose biotin, here I come. (She also gives a nice preview of coming attractions from OMF.) With severe autism in my family (and a positive Beighton score for me personally), I'm pretty excited about all these new possible linkages. One quibble: I wish she'd choose...- Paw
- Post #2
- Forum: General Discussion
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Wim Hof Method. Regulate your own autonomic nervous system. (No Woo Woo)
Merida, I'm open to this too -- even though it probably wouldn't be rational to imagine Eastern approaches will magically cure everything and anything. In my case, even if it's too-little-too-late, it's been empowering to feel that there's something tangible and proactive I can regularly do to...- Paw
- Post #27
- Forum: General Discussion
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ANS Retraining Needed?
I've been taking gabapentin "as needed" for some years. For me it's a tricky drug, so I've avoided building up to full doses. I take 300mg every night at bedtime, using additional doses occasionally as a tool to nudge the parasympathetic system. I am prone to assorted neurological symptoms that...- Paw
- Post #2
- Forum: General Discussion
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Wim Hof Method. Regulate your own autonomic nervous system. (No Woo Woo)
Bless you Merida. No, no, I'm just reading Master Jou's old book, but I've been practicing tai chi for 35 years, so I'm able to put some of what he teaches to the test. And I wanted to share this one little nugget early because it's already changed my perspective on breathing a lot in just a few...- Paw
- Post #22
- Forum: General Discussion
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Wim Hof Method. Regulate your own autonomic nervous system. (No Woo Woo)
A tidbit from my Chinese tai chi master (his book) has given me some exciting new approaches. Basically, instead of directing your awareness to the breathing (air and lungs), you focus on the core muscles (abdomen primarily, but also the diaphragm). Master Jou says this technique is...- Paw
- Post #20
- Forum: General Discussion
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How I put ME/CFS into remission....& even better
Nice web site. I'll be checking back. I like your analogy of being forced to go without sleep for three nights. Sadly, most analogies -- even good ones -- don't quite make their way into most people's skulls when it comes to understanding this disease. As you say, you doubt you'd believe your... -
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How I put ME/CFS into remission....& even better
Thanks for sharing. Your recovery sounds wonderful. I do keep hearing more and more intriguing news about fecal transplants -- so I appreciate you keeping us updated as protocols are clarified. I'm curious about your non-antibiotic ideas for "erasing the gut." -
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Tramadol Does More Than Relieve Pain
Zapped, your theory rings true enough -- although I wouldn't be surprised if it's not universally true. Meanwhile, as we continue down the rabbit hole, new research is suggesting opioid activation might be a more fruitful approach to depression than glutamate reduction. -
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Resource Breathing Techniques for Chronic Fatigue Syndrome and Fibromyalgia
If one believes tai chi and qigong literature, advanced breathing techniques can cure just about anything. I'll report back if I ever reach that level of achievement. So far my practice has convinced me that breathing can help modestly but significantly with easing symptoms enough, for example...- Paw
- Post #2
- Forum: Stress Reduction, Pacing and Exercise
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Tramadol Does More Than Relieve Pain
I don't disagree necessarily, but this points to the varied natures of our diseases. Cymbalta -- not to be toyed with -- has been a lifesaver for me, but my disease seems to have neurological roots. It's a tough dilemma to navigate -- when one's untreated symptoms (or bad "flu" days) are very... -
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Tramadol Does More Than Relieve Pain
Similarly, I've recently been experimenting with kratom -- not daily -- and was surprised to find it significantly energizing and clarifying. Issie may be on to something, or it could simple be that when you ease overall gnawing symptoms you free up the brain and other resources to function more... -
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Fibromyalgia Novel Pain Treatments
I've been using an alcohol-based CBD rub, which I find is only mildly helpful for myalgias, but significantly helpful for neurological pain and burning (if you deal with that). Haven't done mushrooms in decades, but I think they'd certainly be educational if nothing else.- Paw
- Post #5
- Forum: Relieving Pain
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The Difference Maker: Llewellyn King Interviews David Systrom
Thanks Cort, I learned a lot from this -- especially how so many conditions and bodily systems overlap. My neurologist spoke of my small-fiber neuropathy as if it were an isolated condition causing FM, rather than contributing to my autonomic neuropathy, oxygenation problems, PEM, etc. Makes...- Paw
- Post #2
- Forum: ME/CFS and FM News
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