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Better understanding of ANS dysfunction and trauma
Breathing has been on my radar for a few years -- since I had to start using an A-PAP. Ninety percent of my recorded apneas and hypopneas each night are central, not physical. For some reason my nervous system is not prioritizing breathing. And I've also become very aware of this throughout the...- Paw
- Post #6
- Forum: Stress Reduction, Pacing and Exercise
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Better understanding of ANS dysfunction and trauma
An interesting investigation, TJ. Resistance to theories of stress-related triggers, I think, comes in part from sufferers who feel such theories suggest the road to wellness is merely learning to handle stress differently. My suspicion, however, is that some of us are susceptible to systemic...- Paw
- Post #2
- Forum: Stress Reduction, Pacing and Exercise
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Have you tried modafinil?
I liked it temporarily, but then my mouth/tongue starting getting bad sores. After confirming it wasn't stevens/johnson i still took it from time to time when I especially needed help, but, like all stims, its effects were not sustainable for me. But it initially gave me enough hope for...- Paw
- Post #6
- Forum: Energy! Mitochondria, Methylation, B-12, etc.
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Medical Marijuana
Yes, I've never been able to "medicate" during the day -- only in the evening when I'm winding down and have nothing left to accomplish. My symptoms are worst at the end of the day anyway. Occasionally on bad "flu" days when I can't do anything I'll medicate for a nicer rest.- Paw
- Post #7
- Forum: Relieving Pain
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Medical Marijuana
I've been amazed by the differences among strains. I used to think that pot was pot. But now it seems like different strains are very different medications. I find I can't tolerate most sativa-dominate strains, as they amplify my overall neuropathic symptoms. For now, my main choice for waking...- Paw
- Post #5
- Forum: Relieving Pain
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Which HRV (and other) stats should I track???
Great idea, Voner. I'll try to get that together for my upcoming visit with my cardiologist. My experience so far has been pretty similar to what you describe, although I'm still fiddling with my measurement protocols. Morning "readiness" tests before getting out of bed are typically not too...- Paw
- Post #5
- Forum: Heart Rate Variability for Better Health
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Which HRV (and other) stats should I track???
I'll be interested to see what others say, as I've only been following variability (with Elite HRV). So far it's been mainly helpful in differentiating types of fatigue. Turns out my numbers are not too bad when I'm feeling deeply sleepy -- the kind of sleepiness I think of as "poppy fields"...- Paw
- Post #2
- Forum: Heart Rate Variability for Better Health
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NIH ME/CFS Home HRV Study is Open!
Well, it's not like the NIH is swimming in cash, so I see no reason to knock their efforts. We love to criticize government for lack of effectiveness, and then wonder why it's even less effective after we slash its funds. It's the GOP's favorite gift to society: kneecapping. I probably won't...- Paw
- Post #12
- Forum: ME/CFS and FM News
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Combining Drugs May Work Better in Fibromyalgia
I've been taking it for several years, as it has been the only drug that minimizes the flu-like burning-under-the-skin condition that characterizes my FM. Every time I try to wean myself from it, the burning intensifies. I did manage to permanently reduce my nightly dose from 90 to 60mg --...- Paw
- Post #39
- Forum: Relieving Pain
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Triple Your OMF Donation Through November 28th
thanks for the heads up, Merry. I just made a donation.- Paw
- Post #7
- Forum: Advocacy, Contests and Events
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Fibromyalgia Study Suggests FM Patients Heads Not on Straight...:)
I've suspected these areas were problematic for years, but didn't know how deeply involved they could possibly be. I really appreciate your spotlighting them. A lot of these structural symptoms have not seemed extreme enough in me to cause such chronic illness, but perhaps when they are combined...- Paw
- Post #29
- Forum: FIbromyalgia and Pain Research
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Fibromyalgia Study Suggests FM Patients Heads Not on Straight...:)
Amazing stuff, @Merida. Sounds like, while you still have problems, it was a specialized chiropractor who single-handedly brought you back from the brink. I've known about some of these connections, but not about the possibility of such specific, severe causality. You remind me that, 25...- Paw
- Post #26
- Forum: FIbromyalgia and Pain Research
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Fibromyalgia Study Suggests FM Patients Heads Not on Straight...:)
Slightly related, more confirmation that jaw and neck disorders are big red flags (whether causal or symptomatic). This study found a whopping 63% of patients with jaw/neck disorders also met FM criteria. One of my many earlier signs of trouble a couple decades ago was severe TMJ. Now I find...- Paw
- Post #23
- Forum: FIbromyalgia and Pain Research
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CDP Choline may Help with Histamine and Alzheimers
Whew. So much to consider. This might be related to my problems with choline, who knows. I love a rich omelette breakfast but it raises my blood pressure and knocks me out. But that could be the fried potatoes on the side. Interesting tidbit: lecithin is commonly used as a cannabinoid...- Paw
- Post #8
- Forum: General Discussion
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Who doesn't benefit from acetylcholine supplements?
Not precisely. I did do that for a few weeks with my leftover tabs, but it didn't seem to affect what was already occurring with my oral experiment. Hard to say for sure. The researchers are targeting peripheral neuropathy only, so my experiment was focused on whether oral administration might...- Paw
- Post #38
- Forum: Health News
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Who doesn't benefit from acetylcholine supplements?
Yeah, my issue seems to be about how it's processed. Results from inhibitors like galantamine and huperzine are quite positive, while straight supplementation (like alpha GPC) is consistently negative (leading to "flu"). There seem to be conditions (such as the neuropathy the researchers are...- Paw
- Post #30
- Forum: Health News
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Sensory Overload vs. Klonopin: Help!
If you're able to access cannabis, I would think it's the most helpful alternative, with none of the downsides you're dealing with. There would be a learning curve when it comes to choosing the most appropriate strain, dosage, method of dosing, etc, but many people have found great relief from it.- Paw
- Post #2
- Forum: General Discussion
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Getting into Rest and Digest Mode During Relaxation Breaks
My only practical suggestion is one of those head/neck cushions that provide mild neck traction, pulling the head from the shoulders. Mine (a cheapie from Amazon) has pressure-point fingers for the lower neck, which I enjoy relaxing into (they can be painful at first); but most importantly the...- Paw
- Post #9
- Forum: Stress Reduction, Pacing and Exercise
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Who doesn't benefit from acetylcholine supplements?
@Issie, the TRPM3 studies on CFS/ME look very useful, from what I can understand of the write-ups. Glad they're going to continue digging deeper. I temporarily ran out of pregnenolone and felt significantly better when I replenished my supply. I've also been complementing those morning doses...- Paw
- Post #26
- Forum: Health News
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Who doesn't benefit from acetylcholine supplements?
Wow, @Remy, that was an informative podcast! I learned a lot more about choline, epigenetics, etc. And I had the incidental realization that my post here might be construed as questioning the value of acetylcholine itself. Not so. Just to be clear, my interest has been in trying to figure out...- Paw
- Post #25
- Forum: Health News
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