Hi, I'm Elysia — a counsellor living with ME/CFS, fibromyalgia, SUNA, autonomic dysfunction, and MCAS
I run The Woods Counselling, an online practice for people navigating chronic illness, chronic pain, and the trauma that comes with them. I'm a Registered Clinical Counsellor (MA, RCC) and...
A laymen's summary of "Mast cell activation disease: a concise practical guide for diagnostic workup and therapeutic options." Gerhard J Molderings, Stefan Brettner, Jürgen Homann and Lawrence B Afrin. Journal of Hematology & Oncology 20114:10
Criteria
The diagnosis is met if both the major...
First the authors of this intriguing study went through the failed attempts to produce a diagnostic biomarker.
The 1990 criteria for FM (which included tender points) produced a moderately homogeneous group of quote "FM patients" which allows, they believe, for too little precision. (In fact a...
Brain Fog
Mast cell activation syndrome (MCAS) or disorder (MCAD) has been recognized relatively recently. Like other newly recognized disorders that cause a bewildering array of symptoms, people with MCAS were dismissed for many years as being hypochondriacs or being depressed.
The...
Websites
Me and My Mast Cells - by Dr. Laurence Afrin, M.D. and author, contains information on diagnosis, treatment, drugs, MCAS doctors and a blog.
The Low Histamine Chief - former news anchor with MCAS, Yasmina Ykelenstam, provides an informative blog, treatment and research information and...
Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity” by Dr. Lawrence Afrin - A Review
Allergies are not just itching and trouble breathing or caused by hay fever, bee stings or reactions to shellfish and peanuts. While these...
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