2018 Rowe research: Improvement of severe ME/CFS symptoms following surgical treatment of cervical spinal stenosis. Do you have it?

[Karen17]

(I read around some more and found a write up in Cort's blog from 2019). I searched the forums for some previous posting on this and didn't find anything(unless I missed it?). So has anyone had this issue and had surgery for it? Notice any improvement? I know I have had cervical stenosis since before my POTS and ME/CFS. I'm trying to set up an appt. for a neuro to investigate this with me. Dr. Peter Rowe only sees patients up to 25 and I'm way over that. Anyone know of a great doctor that would look into this in the southern states?

 

[Carl#1]

I don't recommend that you do this because it will not really help you apart from limiting your movement. It's a very foolish thing to do IMO. I recommend that you try and dramatically increase your Glycine intake. It can promote a GABA increase which can promote sleep. Taken with P-5-P helps to balance it a bit better and taking with Glutamine and NAC will help produce much needed Glutathione.

Glycine is needed for all collagen production in the human body because it is every third amino acid in collagen. Your body will favour detox and Glutathione and Collagen production will suffer. Also increase your magnesium intake because that is also so important. I get bad neck pain when I don't consume sufficient magnesium.

 

[suzanne-wa]

(I read around some more and found a write up in Cort's blog from 2019). I searched the forums for some previous posting on this and didn't find anything(unless I missed it?). So has anyone had this issue and had surgery for it? Notice any improvement? I know I have had cervical stenosis since before my POTS and ME/CFS. I'm trying to set up an appt. for a neuro to investigate this with me. Dr. Peter Rowe only sees patients up to 25 and I'm way over that. Anyone know of a great doctor that would look into this in the southern states?

I have not had it done. I have followed the progress of several folks who’ve gone the surgical route because I have stenosis. One had stenosis and both had cranio-cervical instability (CCI). On the plus side, it has helped both with POTS, nausea and brain fog, so that’s improvement. However, they’ve also had complicated journeys post-surgery (including issues with spinal cord leaks requiring blood patches). I am not aware of doctors in the southern states who address this.

 

[Carl#1]

I am aware of what causes ME/Fibro and that gets no where close. The cause is a pathogenic bacterial infection in the digestive system and all the symptoms come from that. Mostly from the increased permeability of their biofilm which compromises the digestive barrier. That treatment modality gets no where close and I am totally against it. When a cure comes along from my ideas you will regret ever going down that path because it is irreversible.

If I was you I would dramatically increase magnesium intake and the three amino acids needed for Glutathione, NAC, Glycine and Glutamine. B6 (P-5-P form) to help balance GABA and B2 which is needed for Glutathione reductase. I notice neck pain when I consume insufficient magnesium. I was taking 2 grams/day. Your probably consuming insufficient Glycine which is also needed for collagen generation as well as Glutathione. People age and get skin wrinkles because of insufficient glycine and the dramatic increase in the bodies requirements.