2018 Rowe research: Improvement of severe ME/CFS symptoms following surgical treatment of cervical spinal stenosis. Do you have it?

Karen17

New Member
(I read around some more and found a write up in Cort's blog from 2019). I searched the forums for some previous posting on this and didn't find anything(unless I missed it?). So has anyone had this issue and had surgery for it? Notice any improvement? I know I have had cervical stenosis since before my POTS and ME/CFS. I'm trying to set up an appt. for a neuro to investigate this with me. Dr. Peter Rowe only sees patients up to 25 and I'm way over that. Anyone know of a great doctor that would look into this in the southern states?
 
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Carl#1

Active Member
I don't recommend that you do this because it will not really help you apart from limiting your movement. It's a very foolish thing to do IMO. I recommend that you try and dramatically increase your Glycine intake. It can promote a GABA increase which can promote sleep. Taken with P-5-P helps to balance it a bit better and taking with Glutamine and NAC will help produce much needed Glutathione.

Glycine is needed for all collagen production in the human body because it is every third amino acid in collagen. Your body will favour detox and Glutathione and Collagen production will suffer. Also increase your magnesium intake because that is also so important. I get bad neck pain when I don't consume sufficient magnesium.
 

suzanne-wa

New Member
(I read around some more and found a write up in Cort's blog from 2019). I searched the forums for some previous posting on this and didn't find anything(unless I missed it?). So has anyone had this issue and had surgery for it? Notice any improvement? I know I have had cervical stenosis since before my POTS and ME/CFS. I'm trying to set up an appt. for a neuro to investigate this with me. Dr. Peter Rowe only sees patients up to 25 and I'm way over that. Anyone know of a great doctor that would look into this in the southern states?
I have not had it done. I have followed the progress of several folks who’ve gone the surgical route because I have stenosis. One had stenosis and both had cranio-cervical instability (CCI). On the plus side, it has helped both with POTS, nausea and brain fog, so that’s improvement. However, they’ve also had complicated journeys post-surgery (including issues with spinal cord leaks requiring blood patches). I am not aware of doctors in the southern states who address this.
 

Carl#1

Active Member
I am aware of what causes ME/Fibro and that gets no where close. The cause is a pathogenic bacterial infection in the digestive system and all the symptoms come from that. Mostly from the increased permeability of their biofilm which compromises the digestive barrier. That treatment modality gets no where close and I am totally against it. When a cure comes along from my ideas you will regret ever going down that path because it is irreversible.

If I was you I would dramatically increase magnesium intake and the three amino acids needed for Glutathione, NAC, Glycine and Glutamine. B6 (P-5-P form) to help balance GABA and B2 which is needed for Glutathione reductase. I notice neck pain when I consume insufficient magnesium. I was taking 2 grams/day. Your probably consuming insufficient Glycine which is also needed for collagen generation as well as Glutathione. People age and get skin wrinkles because of insufficient glycine and the dramatic increase in the bodies requirements.
 

Aidan Walsh

Well-Known Member
I am aware of what causes ME/Fibro and that gets no where close. The cause is a pathogenic bacterial infection in the digestive system and all the symptoms come from that. Mostly from the increased permeability of their biofilm which compromises the digestive barrier. That treatment modality gets no where close and I am totally against it. When a cure comes along from my ideas you will regret ever going down that path because it is irreversible.

If I was you I would dramatically increase magnesium intake and the three amino acids needed for Glutathione, NAC, Glycine and Glutamine. B6 (P-5-P form) to help balance GABA and B2 which is needed for Glutathione reductase. I notice neck pain when I consume insufficient magnesium. I was taking 2 grams/day. Your probably consuming insufficient Glycine which is also needed for collagen generation as well as Glutathione. People age and get skin wrinkles because of insufficient glycine and the dramatic increase in the bodies requirements.
You do not mention here what pathogenic bacteria? I have the tests positive to D-Lactate Acidosis in blood done in the UK
 

Carl#1

Active Member
It can be just about any biofilm forming pathogenic bacteria but Staph/MRSA is very common and I do have that but not in the location that causes ME, for me I strongly suspect it is a gram negative, possibly klebsiella pneumoniae. It is highly resistant but it is affected by certain essential oils. A tea of Turkey Tail mushroom had a very strong effect against it but only the first time I took it and then it adapted and is no longer susceptible to it. That is what we are all up against, the biofilm(s) need to be removed before using ANY antimicrobials or they will adapt to the antimicrobial rendering it useless. That is why I keep telling people not to use any antimicrobials, or at least any new antimicrobials because the pathogens will very quickly adapt to them.

BTW at the beginning of the pandemic I had worked out what created the risk, something which researchers have still not done after wasting lots of money on genetic research. My ideas are groundbreaking and would be resisted by certain companies who make big profits from these infections and not by treating them. I contracted Lyme disease and that needs solving first before it kills me. My GP's have done nothing, absolutely nothing to help, I have had to work it all out for myself. A suspected Yersinia enterocolitica or Yersinia pseudotuberculosis infection which might of occurred because of the Lyme & co-infections suppressing my immune system. They cause diarrhoea and pseudo-appendicitis which is a known symptom of these bacteria. I am certain that I have a Bartonella infection causing a dramatic rise in blood pressure and I cannot use the herbs that I have because I refuse to let the damn pathogens in my digestive system sample them and become resistant. My immune system has definitely switched to a Th1 immune response to fight intra cellular pathogens, one of which I believe is Bartonella and there could be others.

I cannot use natural treatments such as Arginine to limit Bartonella species bacteria because it now causes my terrible diarrhoea. The tinyest amount causes watery diarrhoea. Arginine is important to heal and protect the circulatory system from Bartonella and I cannot use it :(

Yersinia needs treating first and that is what I want to ask my GP when I see him. I want a test for that bacteria. I am not a betting type of person but I would bet on it being present based on all the symptoms. NHS testing sucks, they already messed up a Lyme disease test by putting blood in the wrong container. Only just over 10 years so far, if it hadn't been for Lyme I would of been free from ME long ago but I have had so many problems with my immune system and reactions to foods I just cannot cope with how it works now. It's just impossible to manage.
 
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