Did you have success with any of those treatments yourself?
The only thing that briefly made a huge difference was extracting my very first root canal tooth that unbeknownst to me had become rotted.
A week later I exclaimed, “I’ve got my life back!” We celebrated. I slowly began to exercise again. I noted my fatigue seemed to have started in the months after that root canal was done 14 years earlier. That was it! I’d found the answer.
Had my lumpectomy for breast cancer shortly after and I felt great. Then I went for radiation therapy. Three weeks later I could not get out of bed and I haven’t been the same since.
I believe the radiation therapy suppressed my immune system and either Lyme or a retrovirus became activated. I’m guessing that the rotted root canal with endotoxemia was one of the straws on the camel’s back.
I think I am seeing some improvement with pulsed antibiotics for Lyme—I do have worse fatigue during the two weeks I take Tetracycline & Diflucan and feel “livable” during the two weeks off, but it’s still early and I don’t know if this is consistent yet.
I saw no benefit from various other antibiotic courses for Lyme over the course of 1 1/2 years, however.
Kent Holtorf, MD has an article where he talks about possible retrovirus infection (written before it was supposedly “debunked”) and he noted that his chronic Lyme patients were the ones who most often tested positive for retroviruses. He used a test called RNAaseL which is not commercially available.
Perhaps the Borrelia spirochete infection somehow helps activate an underlying retro viral infection.
I’m too scared right now to try anti-retrovirals. Most days I can get through my abridged work schedule—I am the sole provider and I just can’t rock the boat right now.
But if I go downhill again, and feel I have nothing to lose, I will try them and I will post here or start a blog to chronicle my experience.
Best to you. I mourn for my former life and it makes me so sad to realize so many others are feeling the same or worse.