ARVs to be used in UK

[Strike me lucky]

http://forums.phoenixrising.me/inde...lks-in-belfast-sun-7-tues-9-feb-paceni.42866/

 

[Who Me?]

This is from 2011 but it should be revisited. Someone needs to look into ARV's for us. It is possible we have retroviruses yet discovered.

Two Physicians Try Antiretroviral Drugs For ME/CFS


http://biomedicalmecfs.blogspot.com/2011/01/two-physicians-try-antiretroviral-drugs.html

 

[Strike me lucky]

Im interested to know if they are using them against the usual viruses in cfs or have they been able to find the RV implicated?

tenofovir has been mentioned but i think its more hear say. Although other cfsers using arvs on other forums have responded well to tenofovir ?

I think tenofovir is also effective against hepatitis but unsure if its active against other viruses in the herpes family or enterovirus family .

 

[IrisRV]

It's not clear to me if the patient is confusing antivirals with antiretrovirals. She does mention tenofovir, but that was unrelated to what her doctor said. She just said that her friend was getting tenofovir, not that Dr Weir said anything about patients getting tenofovir.

"He believes ME is caused by a virus, he seemed very confident they are going to be an available and effective treatment. They have difficult side effects and for that reason the patient's GP had to be on board. He seemed to prefer this option to Rituximab because RX wears off."

That sounds more like antivirals to me, but it could be referring to antiretrovirals. We'll have to wait and see. I wouldn't advise getting hopes up too soon. It would be amazing if it turns out to be true, though.

 

[Who Me?]

I think I heard one if his patients is on ARV's, or that he has prescribed them. But I'm blanking on the details.

 

[Strike me lucky]

@IrisRV
i agree its not clear on if its av or arv and tenofovir was mentioned about another person. But i have heard from another source that arvs are being used . Time will tell.

 

[Who Me?]

@IrisRV
i agree its not clear on if its av or arv and tenofovir was mentioned about another person. But i have heard from another source that arvs are being used . Time will tell.

The fact that this is even being talked about is significant. Some feel it's not worth the money or effort to pursue what they feel is a dead end.