Autoimmune patients going into remission with Vit D protocol from brazilian Dr..

Issie

Well-Known Member
Thanks for the summary. Would be great to have some reversal. Thankfully I'm very light skinned anyway. But it is getting worse.

Issie
 

tatt

Well-Known Member
private tests for those in the UK
vitamin D http://vitamindtest.org.uk/
PTH ://bluehorizonmedicals.co.uk/epages/89289b91-b6f9-4318-864a-f492cbae7827.sf/en_GB/?ObjectID=472527

Excess vitamin D has been implicated in kidney stones but this may provide some reassurance http://consumer.healthday.com/senior-citizen-information-31/misc-aging-news-10/vitamin-d-supplements-do-not-raise-risk-for-kidney-stones-681155.html However this reseach suggests a problem http://www.ncbi.nlm.nih.gov/pubmed/25623233
Not up to following the science, maybe someone could comment on these mutations and if they are relevant http://www.ncbi.nlm.nih.gov/pubmed/24700880

Personally I try to get my vitamin D in sunlight in the summer. As I feel the cold I sometimes sit outside with bare legs, thick socks and about 3 layers on my top half! A UVB narrowband lamp like these http://www.lighting.philips.com/main/products/special-lighting/phototherapy might be worthwhile but they are a bit pricey.
 

Issie

Well-Known Member
private tests for those in the UK
vitamin D http://vitamindtest.org.uk/
PTH ://bluehorizonmedicals.co.uk/epages/89289b91-b6f9-4318-864a-f492cbae7827.sf/en_GB/?ObjectID=472527

Excess vitamin D has been implicated in kidney stones but this may provide some reassurance http://consumer.healthday.com/senior-citizen-information-31/misc-aging-news-10/vitamin-d-supplements-do-not-raise-risk-for-kidney-stones-681155.html However this reseach suggests a problem http://www.ncbi.nlm.nih.gov/pubmed/25623233
Not up to following the science, maybe someone could comment on these mutations and if they are relevant http://www.ncbi.nlm.nih.gov/pubmed/24700880

Personally I try to get my vitamin D in sunlight in the summer. As I feel the cold I sometimes sit outside with bare legs, thick socks and about 3 layers on my top half! A UVB narrowband lamp like these http://www.lighting.philips.com/main/products/special-lighting/phototherapy might be worthwhile but they are a bit pricey.
http://www.k-vitamins.com/index.php?page=Kidney

Here's some info on the negatives in relation to those mutations. With CKD (chronic kidney disease) there is a problem with conversion of Vit d. It has been found that Vit k can counteract Vit d putting calcium in the veins and arteries and putting it back in the skeleton, where it belongs.

One thing I disagree with this article is it says that CKD can't be reversed. It can. I'm proof. I was in stage 3 and now stage 1. Becoming a vegan helped that. Lots of Vit k.

Issie
 

Folk

Well-Known Member
http://www.k-vitamins.com/index.php?page=Kidney

Here's some info on the negatives in relation to those mutations. With CKD (chronic kidney disease) there is a problem with conversion of Vit d. It has been found that Vit k can counteract Vit d putting calcium in the veins and arteries and putting it back in the skeleton, where it belongs.

One thing I disagree with this article is it says that CKD can't be reversed. It can. I'm proof. I was in stage 3 and now stage 1. Becoming a vegan helped that. Lots of Vit k.

Issie
Interesting... The Doctor from the protocol prescribed Vit K1 and K2
 

Folk

Well-Known Member
Interesting.
Anyone tackle the protocol yet.
May try it next week.
If you do try, keep us posted about how's it going.

I e-mailed one of the doctors from the protocol (the one with the youtube recovery videos I posted here) regarding some questions about his results for FMS or CFS (we don't really have much that diagnosis in Brazil) and he asked me to call him. If you have some doubt I could call and get that clear for you!

good luck
 

greg hay

Active Member
Hi folk.
Sure will....just not right timing for me now as currently in huge relief period from cfs after nearly 2 years.
Started prednisolone.....thyroxine (3 weeks before) and ibrufen together one week ago and have went from a 4 or 5 to a 9/10 in a couple days. I stopped all vits.and supps.
I will narrow it down and report which of the trio that allowed me to see a tunnel of light.
 

greg hay

Active Member
Hi folk.
Does any of the facebook pages have cfs/me remission stories.or mostly MS and so forth.
So the b2 doesnt have to be a mega dose.
If you are talking to doctor please.ask him a out cfs and me.
Thanks for that
 

Folk

Well-Known Member
The problem Greg is that the diagnosis for M.E. simply doesn't exist here. CFS is normally thought as Chronic Fatigue or in other words being, extremelly tired for some reason. There was even a TV show about Chronic Fatigue last week where they told the key is to sleep better, exercise, eat healthy. All that old crap about being in stressfull jobs or enviroments and you know the story.
But I'll call the doctor monday and ask him what's his experience on it ok?

The protocol is supposed to heal any auto immune disease... It was originally develop for MS but there's all kind of stories about Lupus, R.A., Psoriasis and some I didn't even know about.
 

greg hay

Active Member
Thanks folk I owe you one.
Strange how some conditions are not recognised in some countries.
Let me know what he says.
Appreciate it Thanks
 

Folk

Well-Known Member
Well
I called the Dr. and he was pretty gentle.

He said that Chronic Fatigue and Fibromyalgia have an amazing response with the treatment. Thent he asked "what was the other thing you said? encephayite what?" hehehe
I said Myalgic Encephalomyelitis was kind of the official name for CFS but I was concerned cause nothing untill now proved those diseases to be an autoimmune condition. He said that the Vitamin D isn't just for autoimmune problems, it treats allergies (Which he explained why but I don't really remember), and other immune disturbances too. He then gave me an example of a patient with a serious diseasse which I don't remember the name who got amazingly better in 20 days on the treatment (after being to more than 50 doctors with no help (I said I went to more then 100 haha)).
He said I could get my Vit D levels tested just so we could see if the real deal. I said I already did and it was 19 (22 is the minimum here) (before supplementing when it went to 79 and then dropped fast after I stopped to 30 something, now must be arround 19 again). He said that those levels are clearly pretty low and we should go up to 300-400. He said there's at least 90% of chance that will help me a lot.
I asked if it would be the normal Vit D protocol and he said yes, with some additions like diet stuff (he mentioned cutting of wheat, I don't think it's nothing we don't already know about it) and I didn't want to keep asking too much by the phone, he said I could scheduele an appt when I was near his city ( cause I said I was going there... hehe) and they would find an hour for me.

That was basically it!
If there are any questions left just ask me!
 

Issie

Well-Known Member
Well
I called the Dr. and he was pretty gentle.

He said that Chronic Fatigue and Fibromyalgia have an amazing response with the treatment. Thent he asked "what was the other thing you said? encephayite what?" hehehe
I said Myalgic Encephalomyelitis was kind of the official name for CFS but I was concerned cause nothing untill now proved those diseases to be an autoimmune condition. He said that the Vitamin D isn't just for autoimmune problems, it treats allergies (Which he explained why but I don't really remember), and other immune disturbances too. He then gave me an example of a patient with a serious diseasse which I don't remember the name who got amazingly better in 20 days on the treatment (after being to more than 50 doctors with no help (I said I went to more then 100 haha)).
He said I could get my Vit D levels tested just so we could see if the real deal. I said I already did and it was 19 (22 is the minimum here) (before supplementing when it went to 79 and then dropped fast after I stopped to 30 something, now must be arround 19 again). He said that those levels are clearly pretty low and we should go up to 300-400. He said there's at least 90% of chance that will help me a lot.
I asked if it would be the normal Vit D protocol and he said yes, with some additions like diet stuff (he mentioned cutting of wheat, I don't think it's nothing we don't already know about it) and I didn't want to keep asking too much by the phone, he said I could scheduele an appt when I was near his city ( cause I said I was going there... hehe) and they would find an hour for me.

That was basically it!
If there are any questions left just ask me!
I still have low Vit d levels despite using 10,000 a day. I also have a mutation on my VDR gene that has to do with Vit D. I'm sure that is one of the problems. I hope this summer getting in the sun more will help. But have to be careful cause I have vitiligo and will burn BAD in a very short time. Where there is no pigment, you burn. Low Vit D levels make you feel horrid.

Issie
 

Folk

Well-Known Member
Thanks folk thats great.
do you have cfs currently are how long for??
Thanks
I had FMS diagnosis for some time (my pains started 8 years ago and got slowly worse every year). Untill +-6-7 months ago my main problem was pain (I had insomnia and GI trouble but chicken or the egg)... My CFS diagnosis came just when I got a lot worse and started having brain fog, much much more pain, fatigue, couldn't stomach barely anything.

Some doctors agree, some don't, some say it's just the Fibro, others say Fibro and CFS are the same and so it goes... hehe basically this.
 

TigerLilea

Well-Known Member
(before supplementing when it went to 79 and then dropped fast after I stopped to 30 something, now must be arround 19 again). He said that those levels are clearly pretty low and we should go up to 300-400. He said there's at least 90% of chance that will help me a lot.
According to the blood lab that I use, Vitamin D levels greater than 200 is considered TOXIC.
 

TigerLilea

Well-Known Member
I still have low Vit d levels despite using 10,000 a day. I also have a mutation on my VDR gene that has to do with Vit D. I'm sure that is one of the problems. I hope this summer getting in the sun more will help. But have to be careful cause I have vitiligo and will burn BAD in a very short time. Where there is no pigment, you burn. Low Vit D levels make you feel horrid.

Issie
Are you using Vitamin D2 or D3? I've heard of several people who never got good results with high doses of D2 but got their blood levels up considerably using much lower doses of D3.
 

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