It sounds as if you are one of the pour souls on the "dark side" ( that means lights out, bedbound, silence). Have you ever seen this ?i think I posted it yesterday....just riveting -that father is one of our best researcchers at Stanfrd Ron Davis ...
You must be in the UK to post so early? yet
Nope, in Atlanta. 'Time?'...and adaptation to accommodate... .
I’m outta here after this last response, hopefully for clarifications. I only have that metaphorical dollar a day to spend and thinking though appropriate reasoning can eat up a chunk of it.
As far as ‘…bedbound, poor soul… .’ If we met at the same event, you wouldn’t know I had
CFS (all inclusive moniker for ease of reference) and I wouldn’t tell you unless it was necessary for some practical reason. I’m not at all sick-ike, and far from intentionally projecting it, even though I’m so far removed from pre-CFS functioning I don’t remember whether or not ’up time’ was better then or now, when I can contemplate it fully!
Much older than you, I still enjoy a good romp when the romping is possible and available, be it in a hot
Porsche
or getting off a hot porch… ,)
As for the video, I haven’t watched such a belabored piece since
‘CFS, A Living Hell’ circa 1990. I see this kind of stuff
as tools - necessary for some purposes, like raising funds, informing the unaware or the persuading the non-believers. They can also have precisely the opposite intended effect and piss people off: ‘…there go those wining unemployed xyz's again… .’
Years ago there was a billboard on an Aussie beach, paraphrased ‘
Ah, Chronic Fatigue Syndrome', captioned over a photo of a suntanned hot babe sipping her drink while lying on the sunny beach. Of course, public opinion rightly got it removed, but it did reflect some underpinning mindsets, unfortunately still around but less so. This is one good case for using videos like this one -
get ‘em by the balls and their hearts will follow.
Otherwise, I find
PWCs dwelling on the stuff we knew long ago or overly discussing their/our impaired state has negative effects, is depressing and maybe even contributes to a self sustaining degree of morbidity (somatization). It’s like people with one eye moping over all the things only the fully sighted can do, e.g. flying, racing motorcycles or other depth perception activities; or, like hanging around a barber shop - sooner or later the hanger-on is going to get a hair cut.
Adapting to a condition (illness) one can’t change today can still open new doors. If one leg is shorter than the other there are crutches to help one get around. For symptom relief for systemic illnesses any number of ethical pharmaceuticals can help; as can botanicals. As for whether or not to complain about the glass being half empty or to celebrate its being half full, well that’s a state of mind we cultivate, even rewire. It’s where we live most of our lives, whether one foot after the other or vicariously through the experiences of others.
Later, and good luck in rewiring.
