Who Me?
Well-Known Member
My NP rx'd Cromolyn for me but even with insurance it was $183. I was looking for cheaper options when I found some posts on Inspire where some people were getting the powder from a compounding pharmacy in Bellevue, Washington.
I called them yesterday for details. 25 gms powder, 1/8 tsp is 150 mg, 4x/day. A one month supply. That is $70 plus $20 shipping UPS.
I just called a pharmacy where I get my rx's to see if they can do it and they can, same price for pure Cromolyn (another compounding pharmacy I called won't sell it). So my doc called in an RX for me this morning for the powder.
I'm going to take 4 oz water and just under 1/2 tsp of powder and put in a glass bottle and keep it refrigerated. 1 tsp or 5 ml is 100 mgs. That'll give me 23 doses. He said I can make more which I would if I had a bigger glass bottle.
From what I've been reading, taking it this way works even better than the ampoules. Time will tell. And he said he will do this for others if anyone wants to go that route. I have the number of the place in WA if anyone wants that or the compounding pharmacy I used.
Here is another link I found talking about it. Also do you guys who take it drink extra water with it?
http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1295998819
I called them yesterday for details. 25 gms powder, 1/8 tsp is 150 mg, 4x/day. A one month supply. That is $70 plus $20 shipping UPS.
I just called a pharmacy where I get my rx's to see if they can do it and they can, same price for pure Cromolyn (another compounding pharmacy I called won't sell it). So my doc called in an RX for me this morning for the powder.
I'm going to take 4 oz water and just under 1/2 tsp of powder and put in a glass bottle and keep it refrigerated. 1 tsp or 5 ml is 100 mgs. That'll give me 23 doses. He said I can make more which I would if I had a bigger glass bottle.
From what I've been reading, taking it this way works even better than the ampoules. Time will tell. And he said he will do this for others if anyone wants to go that route. I have the number of the place in WA if anyone wants that or the compounding pharmacy I used.
Here is another link I found talking about it. Also do you guys who take it drink extra water with it?
http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1295998819