I was wondering how many CFS sufferers have a caregiver. If you do, how did you find a caregiver? If not, what do you do about assistance and loneliness?
Very good question... I hope others post! I have a husband. Yet we’re often hitting his (reasonable) limits due to the severity of my case. We’re trying to think creatively about how to consider additional help, given financial limitations as well as the vicissitudes (which include little real function) of my daily capacity. We’re also worried about having one more person with whom to communicate.
My wife is the closest thing I have, or need. I'm fairly functional in the CFS spectrum. We just celebrated our first anniversary in November, so I guess I found my caregiver by dating! I've been very blessed to be as functional as I am, and to have found someone who wants to be with me even though I have a non-negligible impairment.I was wondering how many CFS sufferers have a caregiver. If you do, how did you find a caregiver? If not, what do you do about assistance and loneliness?
Excellent question. This is a post I wrote with some ideas I have tried for finding a caregiver, I hope something here might be helpful:
There are state programs that provide free caregivers, but in most states your condition has to be severe to qualify (often these programs are designed to help keep people out of nursing homes).