Rob Rainford
Active Member
Hi everybody,
My name is Rob, male, 45 and from the U.K.
Non smoker, rarely drink alcohol, eat a healthy diet and just slightly over my normal weight.
I could go into great detail but will keep it as short as I possibly can
In 2009 I caught what I thought was a head cold, after 3 months of it not clearing up I started to worry, took a trip to my GP who put it down as bad cold / flu and prescribed antibiotics, unfortunately they didn't work. Then the green foul smelling gunge started to appear from my nose and the headaches really started. More trips to the GP and more pills later I asked to be referred to the hospital where it was confirmed I had Chronic Sinusitis. (In between appointments I started to become exhausted and would sleep a lot) One operation didn't work to get rid of the infection and I had to wait another 12 months for the second operation. The gunge from my nose stopped but the tinnitus didn't.
from 2010 to 2012 I took a right hammering as this monster took hold. I caught what I think was the Noro Virus while out at a restaurant, the 6 other people I was with went home all perfectly fine even though we'd all practically eaten the same dishes. I've never projectile vomited before so much as I did that night.
After that night my health rapidly declined with aches, pains, nausea, headaches, fatigue, Inability to sleep properly. And for no reason the weight piled on and my stomach refused to work properly (Had to stay near the loo at all times)
More trips to the Hospital and GP have had little or no success.
The U.K has little or no information regarding research on ME/CFS or Leaky gut, non that I've found anyway. I'm sure glad I found this place!
The big question some may ask is "has he been formally diagnosed", well kind of, but only after I pushed my GP to be sent to a specialist. This was 12 months ago, A "Yes you have ME/CFS" verbally from the specialist, a few tests later, Cortisol, Vitamin D levels and I'm still in the dark as to what the next steps are. I've been basically told there is no help for me by my GP and to stick to my support group. I also asked my GP if she could sign a document allowing me to try LDN privately. She refused stating she didn't know anything about the drug. So, I've hit a brick wall. Am I being fobbed off??? Seems that way to me.
Anything that has the word "Syndrome" attached seemed to be shunned. That's my experience anyway.
My symptoms are as follows:
1) Tinnitus which gets worse the more exhausted I am.
2) Almost daily fatigue with aching joints.
3) Stomach problems which have me running to the toilet on a regular basis (Could be leaky gut???)
4) Mind fog.
5) Inability to get my words out in conversation. Sounds as if I'm drunk at times.
6) The inability to sleep. My partner has told me I talk and laugh in my sleep on almost a daily basis and wake feeling exhausted with sore eyes.
7) Constant Flu like feeling
Thanks for reading and a happy new year to everyone.
My name is Rob, male, 45 and from the U.K.
Non smoker, rarely drink alcohol, eat a healthy diet and just slightly over my normal weight.
I could go into great detail but will keep it as short as I possibly can
In 2009 I caught what I thought was a head cold, after 3 months of it not clearing up I started to worry, took a trip to my GP who put it down as bad cold / flu and prescribed antibiotics, unfortunately they didn't work. Then the green foul smelling gunge started to appear from my nose and the headaches really started. More trips to the GP and more pills later I asked to be referred to the hospital where it was confirmed I had Chronic Sinusitis. (In between appointments I started to become exhausted and would sleep a lot) One operation didn't work to get rid of the infection and I had to wait another 12 months for the second operation. The gunge from my nose stopped but the tinnitus didn't.
from 2010 to 2012 I took a right hammering as this monster took hold. I caught what I think was the Noro Virus while out at a restaurant, the 6 other people I was with went home all perfectly fine even though we'd all practically eaten the same dishes. I've never projectile vomited before so much as I did that night.
After that night my health rapidly declined with aches, pains, nausea, headaches, fatigue, Inability to sleep properly. And for no reason the weight piled on and my stomach refused to work properly (Had to stay near the loo at all times)
More trips to the Hospital and GP have had little or no success.
The U.K has little or no information regarding research on ME/CFS or Leaky gut, non that I've found anyway. I'm sure glad I found this place!
The big question some may ask is "has he been formally diagnosed", well kind of, but only after I pushed my GP to be sent to a specialist. This was 12 months ago, A "Yes you have ME/CFS" verbally from the specialist, a few tests later, Cortisol, Vitamin D levels and I'm still in the dark as to what the next steps are. I've been basically told there is no help for me by my GP and to stick to my support group. I also asked my GP if she could sign a document allowing me to try LDN privately. She refused stating she didn't know anything about the drug. So, I've hit a brick wall. Am I being fobbed off??? Seems that way to me.
Anything that has the word "Syndrome" attached seemed to be shunned. That's my experience anyway.
My symptoms are as follows:
1) Tinnitus which gets worse the more exhausted I am.
2) Almost daily fatigue with aching joints.
3) Stomach problems which have me running to the toilet on a regular basis (Could be leaky gut???)
4) Mind fog.
5) Inability to get my words out in conversation. Sounds as if I'm drunk at times.
6) The inability to sleep. My partner has told me I talk and laugh in my sleep on almost a daily basis and wake feeling exhausted with sore eyes.
7) Constant Flu like feeling
Thanks for reading and a happy new year to everyone.
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