Food Intollerances

DanDan6683

New Member
Hey Everyone,
I'm new here and just reaching out to see if anyone can help me. I feel like ive tried everything and feel totally lost.

Im sensitive to almost every food. Ive tried so my diets, Keto, Vegan, Vegetarian, Carnivore, GAPS, and then varied elimination diets, but i seem to react to almost eveything. Its been 15 years of trying. Im losing hope.

I have tried Chinese medicine, Ayurvedia medicine, and tried to follow their food plans too but still i react constantly.

My face swells up and i look unrecognisable, crushing fatigue and migrains almost every day. I have Diagnosed M.E/CFS. Is this just something we have to live with or is there any help out there?

Any suggestions that any of you might have would be really appreciated.

Many thanks

Dan
 
Hey Everyone,
I'm new here and just reaching out to see if anyone can help me. I feel like ive tried everything and feel totally lost.

Im sensitive to almost every food. Ive tried so my diets, Keto, Vegan, Vegetarian, Carnivore, GAPS, and then varied elimination diets, but i seem to react to almost eveything. Its been 15 years of trying. Im losing hope.

I have tried Chinese medicine, Ayurvedia medicine, and tried to follow their food plans too but still i react constantly.

My face swells up and i look unrecognisable, crushing fatigue and migrains almost every day. I have Diagnosed M.E/CFS. Is this just something we have to live with or is there any help out there?

Any suggestions that any of you might have would be really appreciated.

Many thanks

Dan
Have you met with a ME specialist yet? It sounds like you need help with reducing inflammation, mast cell activation and repairing your gut. My naturopathic doctor helped me repair my gut. Perhaps that would be an option for you?
 

shira

Member
Hey Everyone,
I'm new here and just reaching out to see if anyone can help me. I feel like ive tried everything and feel totally lost.

Im sensitive to almost every food. Ive tried so my diets, Keto, Vegan, Vegetarian, Carnivore, GAPS, and then varied elimination diets, but i seem to react to almost eveything. Its been 15 years of trying. Im losing hope.

I have tried Chinese medicine, Ayurvedia medicine, and tried to follow their food plans too but still i react constantly.

My face swells up and i look unrecognisable, crushing fatigue and migrains almost every day. I have Diagnosed M.E/CFS. Is this just something we have to live with or is there any help out there?

Any suggestions that any of you might have would be really appreciated.

Many thanks

Dan
you might want to try LDI-low dose immunotherapy with Dr. ty vincent-sounds like you would be a perfect candidate for this treatment. https://www.globalimmunotherapy.com/ he also has alot of short videos on you tube.
 

Jeffee

New Member
I would recommend LDN, high dose thiamine, and lots of ginger and broccoli.
These things have very much lessened my own food sensitivities
 

Creekside

Active Member
My ME started as a type IV food sensitivity, with a precise and consistent 48 hr (+/- a few minutes) delay. No swelling, just an abrupt rise of flu-like symptoms (lethargy, brainfog, aches, malaise) accompanied by a slight rise in body temperature (several tenths to a full degree C). It started with oranges, and then spread to most foods. White rice and cornstarch were about the only safe foods for me.

That sensitivity lasted 2.5 years. Then I had a moderate case of food poisoning (spoiled coconut milk in curry) which gave me a good flushing out. The next day, no more type IV reaction. My theory is that there was some microbe in my gut that was causing an abnormal immune reaction, and the flushing out allowed the good microbes to finally clear the bad ones out. I'd had several sessions of different antibiotics during that 2.5 years, but that didn't affect the sensitivity. So, that kind of sensitivity can be cured, but it's not necessarily easy.

More recently, I abruptly developed an intolerance to a metabolite of dietary fibre. I spent a year avoiding fermentable dietary fibre (psyllium is non-fermentable and was safe). Then I took a probiotic capsule, and that cured that problem. So, the gut microbiome can have serious effects on health.

Your situation is different from mine. Is there a consistent long delay, implying type IV reaction? My suggestion is to keep a food/activity/symptoms journal, as detailed as you are comfortable with. Human memory is just too fallible for remembering what you ate several days previous. Then see if there are any foods that are safe or are worse than others. From that you might be able to figure out what component of the foods might be responsible. At different periods, I was intolerant of palmitic acid, niacin, tryptophan, proline, and malic acid. Figuring out which component is responsible takes experimentation and time, but it can be really helpful.

When I had the type IV sensitivity, a rotation diet (5-day between food families) did work to avoid the symptom flare-ups. Inconvenient (grocery stores carry remarkably few food families), but I found it better than being ill several times each day.

Since I did have that problem, I can say that intolerance of most foods really sucks. However, as I've found several times, treatments and cures are possible, so don't give up hope.
 

ruanmalan

New Member
Hey Everyone,
I'm new here and just reaching out to see if anyone can help me. I feel like ive tried everything and feel totally lost.

Im sensitive to almost every food. Ive tried so my diets, Keto, Vegan, Vegetarian, Carnivore, GAPS, and then varied elimination diets, but i seem to react to almost eveything. Its been 15 years of trying. Im losing hope.

I have tried Chinese medicine, Ayurvedia medicine, and tried to follow their food plans too but still i react constantly.

My face swells up and i look unrecognisable, crushing fatigue and migrains almost every day. I have Diagnosed M.E/CFS. Is this just something we have to live with or is there any help out there?

Any suggestions that any of you might have would be really appreciated.

Many thanks

Dan
Hi Dan, that is rough, its not something you just have to accept, although I found acceptance does help with changing it.
My situation was similar to yours in many ways but is now dramatically improved.

Food sensitivities seem to be in a few categories, experimenting with these might help:
1) Allergies and IgG and IgA intolerances are seemingly mostly to proteins, I was allergic to around 40 different plant proteins.
Our bodies need amino acids, and we dont seem to get allergies to the amino acids themselves, only to the proteins we dont fully digest.
Due to all the other health problems we don't digest the proteins well and then become deficient in some amino acids.
If you are allergic or deficient or both then try using amino acid drinks rather than eating proteins, I use Alpha Amino and add Glycine because those are the ones I tend to be low in.
If you do eat animal proteins make sure your stomach acid is high enough - cheap to supplement.
If you get reflux its usually because the valve in the stomach doesn't close because the acid is too LOW, not too high.
Cutting out most proteins and supplementing amino acids made a massive difference to me.
A good diverse digestive enzyme like Enzymedica Digest Spectrum covers many of these bases.

2) Once digestion is compromised, and due to our modern lack of traditional cooking methods, and our hurried lifestyle, many of us are very sensitive to plant based substances like lectins.
Consider a mono diet e.g. a few days of only amino acids and corn or sweet potato.
My biggest weak point turned out to be nightshades.
If a mono diet is too hard consider investing in ELISA array allergy and food intolerance testing, or "food inflammation testing" which can look at ~170 foods and tell you exactly what you do and don't react to.

3) Once in a vicious circle the toxic overload is challenging. When you work on keeping your liver healthy you start noticing when headaches are liver related.
I rely on a combination of a herbal mix for liver health like dandelion, taurine, and milkthistle, and on regular asparagus and pears.
Fruits and seaweeds are blessings both for detoxing and for healing.
I make a daily detox smoothie with turmeric, coriander, atlantic red dulse, amino acids, barley green and wheatgrass, and beetroot powder. If you persist it bears fruits eventually so try to do it in a way you can enjoy and sustain. I add cranberries and dates.

4) My biggest other problem related to micro circulation, have seen so many specialists over the years with all parts of my body affected. Triple anticoagulant therapy - in a natural version made a massive difference for me - Dan Shen, Turmeric with black pepper, and White willow bark. I cannot recommend sciencedrivensupplements.com highly enough.

5) If found it necessary to constantly keep researching, no-one out there has all the answers for our specific combinations of challenges.

Good luck, I hope you have some good improvements soon!
 
Last edited:
I have had severe food intolerances since I took some antibiotics. I greatly improved them with FMT:
 

RosieBee

New Member
My ME started as a type IV food sensitivity, with a precise and consistent 48 hr (+/- a few minutes) delay. No swelling, just an abrupt rise of flu-like symptoms (lethargy, brainfog, aches, malaise) accompanied by a slight rise in body temperature (several tenths to a full degree C). It started with oranges, and then spread to most foods. White rice and cornstarch were about the only safe foods for me.

That sensitivity lasted 2.5 years. Then I had a moderate case of food poisoning (spoiled coconut milk in curry) which gave me a good flushing out. The next day, no more type IV reaction. My theory is that there was some microbe in my gut that was causing an abnormal immune reaction, and the flushing out allowed the good microbes to finally clear the bad ones out. I'd had several sessions of different antibiotics during that 2.5 years, but that didn't affect the sensitivity. So, that kind of sensitivity can be cured, but it's not necessarily easy.

More recently, I abruptly developed an intolerance to a metabolite of dietary fibre. I spent a year avoiding fermentable dietary fibre (psyllium is non-fermentable and was safe). Then I took a probiotic capsule, and that cured that problem. So, the gut microbiome can have serious effects on health.

Your situation is different from mine. Is there a consistent long delay, implying type IV reaction? My suggestion is to keep a food/activity/symptoms journal, as detailed as you are comfortable with. Human memory is just too fallible for remembering what you ate several days previous. Then see if there are any foods that are safe or are worse than others. From that you might be able to figure out what component of the foods might be responsible. At different periods, I was intolerant of palmitic acid, niacin, tryptophan, proline, and malic acid. Figuring out which component is responsible takes experimentation and time, but it can be really helpful.

When I had the type IV sensitivity, a rotation diet (5-day between food families) did work to avoid the symptom flare-ups. Inconvenient (grocery stores carry remarkably few food families), but I found it better than being ill several times each day.

Since I did have that problem, I can say that intolerance of most foods really sucks. However, as I've found several times, treatments and cures are possible, so don't give up hope.
I had a similar result from food poisoning. For many years I had problems with wheat, including dermatitis herpetiformis on my fingers. After a nasty bout of food poisoning from eating rice noodles from the previous day, I found I could eat wheat as normal. I had followed Ken Lassesen’s microbiome protocol, that seeks to shift harmful bacteria that have got a foothold, which was helpful: but the indiscriminate clear out from food poisoning did seem to hit the target!
 

Edie

Active Member
Food sensitivities have been a real problem for me in the last 10 years. I read the book From Fatigue To Fantastic written by Dr. Jacob Teitelbaum who also has our illnesses and found a treatment that works great. It is called N.A.E.T. Great info. on the internet. There are acupuncturist and Chiropractors as well as Naturopathic Dr. and Drs. of Chinese medicine that are trained to do it. Within 24 hours after the treatment I can eat that food again with no problem. Hope you can find someone near you that can do N.A.E.T. In Canada I pay $85 per treatment.
 

TAllen

Member
You have all the symptoms of Mast Cell Activation syndrome. You over-react to histamine. Lots of info online and on this website about it. Also look at treatlyme.net and search MCAS. (Even though you don't have Lyme) for an easy to undertand article. Besides eliminating histamine from your diet (for awhile at least) you need to start taking DAO (Diamine oxidase) and the brand NaturDAO works and is the cheapest right now. I recommend getting genetic testing done by Genomic Insight because that will tell you if this is a genetic issue or whether you find another cause that's curable. Good luck!
 

Darkiehol

New Member
I've heard some positive experiences with protein it helping people manage sensitivities. Of course, it's always crucial to check with your healthcare provider first. I'm pretty new here myself, so I understand the overwhelming feeling, but this community is great for support and shared experiences.
 

Darkiehol

New Member
I've heard some positive experiences with protein it helping people manage sensitivities. Of course, it's always crucial to check with your healthcare provider first. I'm pretty new here myself, so I understand the overwhelming feeling, but this community is great for support and shared experiences.
It's been difficult for me, too, trying various diets and alternative treatments. I know how disheartening it can be when nothing seems to work. But I did find something that might be worth considering, though - raw organic whey protein.
 

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