cfs

  1. H

    Is the Link Between CFS & Autism What You've been Looking for?

    I believe many of us either have been waiting or searching unconsciously for a connection between chronic fatigue syndrome and autism. Here is an article you will find extremely interesting: How Does CFS Relate to Autism, Asperger's, & Fibromyalgia?
  2. M

    CFS why ?

    Since all these theorys flying about what cause CFS , i thought i throw one more on the long line. I would call the condition CFS as the collapse of extracellular matrix(ECM ) The events that cause the collapse of ECM, is because our environment has changed so much from the time ancestors...
  3. ponypanic

    Low back pain

    Hi My story 3 months ago I was working full time, attending hot yoga and spinning once a week and generally active and motivated .. Then I developed a Temperature and felt unwell, I thought urine infection and passed blood, doctors thought renal colic and sent me to a&e , once there they thought...
  4. ponypanic

    Symptom advice

    hi I have been off work for 2 months, it started with blood in the urine and feeling like I had flu, a urine sample showed Acinetobacter bunamii and I had the treatment for it ( only sensitive to ciprofloxacin) but I have not improved sufficiently to return to work. I have shaking symptom in...
  5. D

    Almost crippling breathing problems?

    Hi guys, Thanks again for having me here. As I said in my introduction - I was diagnosed a few weeks ago and referred to the CFS service here in the UK. Only problem is I've been waiting almost 18 months for some answers and since March to get a referral. I had a lot of private testing...
  6. P

    Ubiome Explorer +, Parasite Infections and CFS

    I was diagnosed with CFS/ME at Stanford's CFS Clinic in 2015. I helped fund Dr Naviaux's Metabolomics Study, was a CFS participant and it confirmed I was in the CFS/ME group based on my metabolomics profile. I have struggled with CFS and a wide range of ever worsening symptoms for more than 15...
  7. O

    Anyone involved In CFS research?

    I there anyone one on here who is doing research on CFS that is interested in discussing theories and ideas?:);)
  8. O

    Solved Sub type of Chronic Fatigue Syndrome.

    Hello, I will give you a brief summary of what my work is about. I am claiming to have solve the cause of CFS from a particular group of patients who are diagnosed with the syndrome. In the file below is a brief explanation on what the cause of illness is with evidence and reasoning to back it...
  9. O

    Hello all

    Hey I am new here and I am interesting in hearing from people who have had an ACTH stimulation test, if so how did the test go?
  10. C

    Searching for a doctor to treat FM/CFS

    Hi All, I am still searching for a doctor to treat me for FM/CFS. I've seen 17 doctors (internal medicine, neurologists, rheumatologist, pain management, rehabilitation medicine, all to no avail. I am yet again searching for another doctor. I wrote a similar thread like this back in January...
  11. C

    Struggles in Faith

    I'm 24 and have had CFS for 2 years. The improvement in the last 6 months has been amazing. Everything is slowly but surely improving. But one thing that I seemed to have left behind is my faith. I have been brought up in a Christian household. Throughout my childhood and teenage years I went...
  12. C

    Salus Fatigue Foundation

    Version:1.0 StartHTML:000000291 EndHTML:000012362 StartFragment:000011953 EndFragment:000012242 StartSelection:000011953 EndSelection:000012242 SourceURL:http://forums.phoenixrising.me/index.php?threads/mirror-my-body-shut-down-woman-reveals-her-heartbreaking-battle-with-cfs.56459/ Mirror: My...
  13. R

    Homeopathy - My Cure after 15 years

    I’ve written this testimony, hoping that it can help other people who look to these forums for guidance. I myself, used to go online, searching for any glimmer of hope or new piece of information I could find to help with the chronic fatigue I’d experienced for 15 years. Here is my story and how...
  14. tearydawn

    CFS a form of MS?

    Is it possible that this is just a different form of MS? How many of us have brain lesions? I'm being monitored for MS at the moment. I've had symptoms for 16 years starting in the military post vaccinations. I do have small lesions in my frontal and occipital deep white matter...
  15. J William M Tweedie

    Possible Mechanism Identified for 'Chronic Fatigue Syndrome'

    More progress! Blockage of a key metabolic enzyme could explain the profound lack of energy and other symptoms experienced by patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), new research suggests. The findings were published December 22, 2016, in the Journal of...
  16. Diana Maus

    Low platelets and low B-12!

    My platelets have been dropping for several years, now at 78. My previous doc didn't seem concerned (he's a cardiologist). I started B12 supplements in November when a new doctor finally diagnosed a B12 deficiency. Looking back at tests, this deficiency has been there for years and my old doc...
  17. Jill T

    Epigenetic modifications and glucocorticoid sensitivity in ME/CFS

    From Millions Missing Canada FB post: Sharing his exciting epigenetic research with us at the Toronto "Sick-In", Wilfred De Vega, PhD candidate at the University of Toronto, is presenting his breakthrough findings in a subgroup of ME patients at the International ME Conference in Fort...
  18. C

    Pineal Gland Cyst

    Hi all I've newly been diagnosed with CFS/M.E. During diagnosis I had blood tests and an MRI. The blood tests came back normal and so did the MRI. They did find an incidental pineal gland cyst. I only found this out through requesting the results directly from the hospital. But these results...
  19. Grace2U

    MetanX?

    I am experiencing a 4th week of Having less pain and more energy. This is the longest period of time (since 2007) I have felt that pacing may actually work for me. Before this, I could not go more than 2 partial days without diving into an array of horrible CFS symptoms for 3-4 weeks at a...
  20. Victor Maalouf

    Cause & Cure

    I just finished a paper and a few video presentations on the "cause and cure" to the syndromes and symptoms labeled as CFS/ME, Fibromyalgia, chronic Lyme, Gulf War Syndrome, and many cases of Autism Spectrum. I'm being purposefully brazen with the title. My work is based on 2 and a half years of...

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