cfs

  1. B

    Microbiome in CFS and ME

    Decades ago I experienced a year of chronic fatigue due to exposure to an industrial solvent called trichloroethylene. Years ago I was able to find research identifying specific changes which the solvent caused in cellular energy production. Yet recently I found this 2021 article linking the...
  2. D

    Food Intollerances

    Hey Everyone, I'm new here and just reaching out to see if anyone can help me. I feel like ive tried everything and feel totally lost. Im sensitive to almost every food. Ive tried so my diets, Keto, Vegan, Vegetarian, Carnivore, GAPS, and then varied elimination diets, but i seem to react to...
  3. A

    ME CFS patients and medical assistance in dying (MAID)

    Six countries allow medical assistance in dying, Belgium, Canada, Colombia, Luxembourg, Switzerland and The Netherlands. Columbia and some territories in the USA only allows it for terminal patients. In the USA 11 jurisdictions allow it for terminal patients only: California, Colorado...
  4. LA2SD

    Anyone w/an Invisible Disease please read? Concerns re: our community

    Hello new fatigued friends, I suppose we can make this my introduction. :) I have unfortunately stayed away from the ME/CFS community for awhile, not totally, intentionally trying to, but there are reasons I've been away, but I should not have to. And now that I've joined Health Rising...
    • LA2SD
    • Thread
    • autoimmunity cfs chronic fatigue fibromyalgia introductions multiple chemical sensitivity multiple sclerosis myalgic encephalomyelitis
    • Replies: 12
    • Forum: General Discussion
  5. T

    Valcyte - European Clinics Help!

    Dear Community, I am new to this forum and have been led here by desperation and need. I have been bedridden for over one and a half year now and I am getting worse by the day. I have seen and heard a lot of great things of the drug Valcyte (Valganciclovir) and I have been searching for a...
    • tnmp
    • Thread
    • cfs immune deficiency sigmd valcyte valganciclovir
    • Replies: 0
    • Forum: General
  6. H

    Is the Link Between CFS & Autism What You've been Looking for?

    I believe many of us either have been waiting or searching unconsciously for a connection between chronic fatigue syndrome and autism. Here is an article you will find extremely interesting: How Does CFS Relate to Autism, Asperger's, & Fibromyalgia?
  7. M

    CFS why ?

    Since all these theorys flying about what cause CFS , i thought i throw one more on the long line. I would call the condition CFS as the collapse of extracellular matrix(ECM ) The events that cause the collapse of ECM, is because our environment has changed so much from the time ancestors...
  8. ponypanic

    Low back pain

    Hi My story 3 months ago I was working full time, attending hot yoga and spinning once a week and generally active and motivated .. Then I developed a Temperature and felt unwell, I thought urine infection and passed blood, doctors thought renal colic and sent me to a&e , once there they thought...
    • ponypanic
    • Thread
    • back backpain cfs lonely myalgic encephalomyelitis pain
    • Replies: 15
    • Forum: Symptoms
  9. ponypanic

    Symptom advice

    hi I have been off work for 2 months, it started with blood in the urine and feeling like I had flu, a urine sample showed Acinetobacter bunamii and I had the treatment for it ( only sensitive to ciprofloxacin) but I have not improved sufficiently to return to work. I have shaking symptom in...
  10. D

    Almost crippling breathing problems?

    Hi guys, Thanks again for having me here. As I said in my introduction - I was diagnosed a few weeks ago and referred to the CFS service here in the UK. Only problem is I've been waiting almost 18 months for some answers and since March to get a referral. I had a lot of private testing...
    • David Tyrer
    • Thread
    • breathing breathing stops cfs liverpool
    • Replies: 132
    • Forum: Symptoms
  11. P

    Ubiome Explorer +, Parasite Infections and CFS

    I was diagnosed with CFS/ME at Stanford's CFS Clinic in 2015. I helped fund Dr Naviaux's Metabolomics Study, was a CFS participant and it confirmed I was in the CFS/ME group based on my metabolomics profile. I have struggled with CFS and a wide range of ever worsening symptoms for more than 15...
    • Pgrovetom
    • Thread
    • cfs constipation ibs ibs-c neuroinflammation nucala pain parasites
    • Replies: 3
    • Forum: General Discussion
  12. O

    Anyone involved In CFS research?

    I there anyone one on here who is doing research on CFS that is interested in discussing theories and ideas?:);)
  13. O

    Solved Sub type of Chronic Fatigue Syndrome.

    Hello, I will give you a brief summary of what my work is about. I am claiming to have solve the cause of CFS from a particular group of patients who are diagnosed with the syndrome. In the file below is a brief explanation on what the cause of illness is with evidence and reasoning to back it...
  14. O

    Hello all

    Hey I am new here and I am interesting in hearing from people who have had an ACTH stimulation test, if so how did the test go?
  15. C

    Searching for a doctor to treat FM/CFS

    Hi All, I am still searching for a doctor to treat me for FM/CFS. I've seen 17 doctors (internal medicine, neurologists, rheumatologist, pain management, rehabilitation medicine, all to no avail. I am yet again searching for another doctor. I wrote a similar thread like this back in January...
    • Chloe18
    • Thread
    • cfs doctor resources fibromyalgia
    • Replies: 1
    • Forum: General
  16. C

    Struggles in Faith

    I'm 24 and have had CFS for 2 years. The improvement in the last 6 months has been amazing. Everything is slowly but surely improving. But one thing that I seemed to have left behind is my faith. I have been brought up in a Christian household. Throughout my childhood and teenage years I went...
  17. C

    Salus Fatigue Foundation

    Version:1.0 StartHTML:000000291 EndHTML:000012362 StartFragment:000011953 EndFragment:000012242 StartSelection:000011953 EndSelection:000012242 SourceURL:http://forums.phoenixrising.me/index.php?threads/mirror-my-body-shut-down-woman-reveals-her-heartbreaking-battle-with-cfs.56459/ Mirror: My...
  18. R

    Homeopathy - My Cure after 15 years

    I’ve written this testimony, hoping that it can help other people who look to these forums for guidance. I myself, used to go online, searching for any glimmer of hope or new piece of information I could find to help with the chronic fatigue I’d experienced for 15 years. Here is my story and how...
  19. tearydawn

    CFS a form of MS?

    Is it possible that this is just a different form of MS? How many of us have brain lesions? I'm being monitored for MS at the moment. I've had symptoms for 16 years starting in the military post vaccinations. I do have small lesions in my frontal and occipital deep white matter...
  20. J William M Tweedie

    Possible Mechanism Identified for 'Chronic Fatigue Syndrome'

    More progress! Blockage of a key metabolic enzyme could explain the profound lack of energy and other symptoms experienced by patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), new research suggests. The findings were published December 22, 2016, in the Journal of...

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