LA2SD
Active Member
Hello new fatigued friends,
I suppose we can make this my introduction.
I have unfortunately stayed away from the ME/CFS community for awhile, not totally, intentionally trying to, but there are reasons I've been away, but I should not have to. And now that I've joined Health Rising, which I'm grateful to Cort for, I feel I need to address those issues upfront because they are hurting the community as a whole (not speaking of Health Rising specifically here, but of the entire ME/CFS community), and now that I'm trying again here, I don't want these things to harm ME/CFS or even FM or MS sufferers here.
1. I've been pushed out of a past CFS forum for telling medical truths that could save lives in the past. The moderators were literally deleting my posts before anyone could read them in response to their questions.
Please, folks, let's never censor medical information or research, regardless if it's hard for you to believe at first. Let people hear everything, and let the reader decide what's helpful or not, because - let's face it - most of us are NOT fully healed, most of our doctors are baffled - if we don't have 100% a final, full answer and proper diagnosis that leads to 100% healing, then we must be open to learning. In other words, I'm tired of the ignorance, albeit mostly sincere and innocent, of my own ME/CFS community.
So far, I am proud and thankful to report that my initial comments here have not been deleted - thank you, Health Rising! So we're looking good here so far at Health Rising. Let's keep it going. There is still a naivete and sincere ignorance still in the worldwide ME/CFS/FM community, and maybe even MS, that I will discuss in due time. Many wonder why our needs are not being addressed and taken seriously more. I hope they can in due time, but it would behoove everyone to finally realize that the medical system in Western nations has been corrupted, to include the CDC, FDA, and NIAID. Because we tend to use our own personal feelings to understand the world, we assume others care about humanity as much as we do. Please understand that those in power who stand to gain billions off our ignorance do NOT care, and would like to keep it this way and stay in power, and those leading Big Pharma do not care whether you heal or die, but they do care how much they can gain from your suffering. So if getting you on pharmaceuticals to only manage disease and not heal is something they can do, then they will do it over healing you. Truly, we could have easily cured these things 30-40 years ago or more. But many of the cures have been covered up and the doctors that used them have been attacked by the FDA or murdered by Big Pharma (the two are in bed with one another, and many just rotate in and out as the heads of each others' organizations, including the NIAID who is in cahoots w/their corruption and paid well). The list is now getting huge of the doctors that have been attacked. Eventually I will tell you what doctors have told me themselves, and many are scared for their lives and medical licenses right now in SoCal if they do too much for their patients to heal them of seemingly incurable diseases, or if they write them too many letters of support. Literally, all 4 clinics I go to in SoCal that are trying to help people are all under attack in small or large ways. Also, a potential cure has just been banned by the CA State Pharmacy Board. Somebody's payin' somebody some big bucks, if you know what I mean. But if they can keep banning cures here, then they know they will succeed in the rest of the USA, and maybe the world, with California being one of the most open and liberal regions when it comes to unconventional therapies in the Western world. I.e., the corruption at the top doesn't represent We, the People.
In other words, to understand what we're up against, dear friends, this is an all out war, and you must learn to become a Spiritual Warrior now, even as fatigued as we all are. It is too much to explain it all now, but give me some time and I will try. I do think a lot of it will be too hard for some to believe though, so let me give it to you little by little.
Please know I am NOT a conspiracy theorist and I hate the term, so don't write me off or accuse me of being one (that term was first coined by the C I A as part of a public psychological operation to shame those that were questioning JFK's murder, because, yes, our own leaders had him killed. He was doing too much for The People and not enough for the slave masters and their families who still run the Western world till this day. You can actually read about this in Freedom of Information Act requests.) The psyop was a success, and those telling the truth contrary to the lies the C I A spreads through their paid-off media that run every mainstream outlet today, are still shamed and unheard by those taught to write the truthtellers off as just "conspiracy theorists." Little by little I will try to teach you how deep the brainwashing goes over our people and medical institutions and the full reasons why, if you will allow me.
I am a TRUTH Warrior, and I will always come back and correct myself if I'm wrong. I spend more time in the Truth community than I do in the ME/CFS communities, but we need to change that. You need me as much as I need you, and God willing I heal one day, I'm going to fight for your right to be heard. I cannot take it to hear some of our sufferers have committed suicide. ;( I will not stand for the injustice and is why I'm coming to you here to wake you up to the bigger picture out of my love for you all. I hope you and Cort receive me. I am a force to be reckoned with and I know you all are too, and that is why darkness has tried so hard to silence us and take us out.
2. Please, let's stop arguing about the terms ME or CFS, as I've had ME people be offended by my use of CFS. We all know CFS is just an easy way to describe a set of symptoms. We all know we need to be seeking further diagnoses than both ME or CFS and many have found them. It's fine to relate to one term more than the other. Me, I personally relate to CFS more than ME, but I see markers and symptoms that crossover to ME, and I learn from ME sufferers. My doctors have never used the term ME though. I can relate to people with FM too though, as we all have some similar symptoms. If I didn't do what I do to heal, I think I would have FM or MS. Others have tried to argue about this with me elsewhere, totally ignoring more life-saving info I was trying to give them. Understand it is easier to write "CFS" than to spell out "Chronic Fatigue." Allow us to use it to even describe symptoms as our doctors do. It seems this offends those in other countries though, maybe like in Denmark where CFS patients have been shamed. It's fine if you don't think they are related in your own case, but in all cases I've looked at, the causes do look related, the difference seems to be where the virus travels, if there is a viral influence, and there does seem to be more and more as the honest doctors and researchers speak out. Nevertheless, I'm open to hearing different case studies if you want to share in your experience of ME and FM and MS or even CFS so we can all get to the bottom of it together.
We have to become our own experts, our own doctors, and our own advocates.
Where I'm from in SoCal, CFS is NOT to be shamed, nor do my doctors shame me for having it. They may not know how to fully help me, and they think it is mostly related to PTSD and insomnia, but it is not an embarrassing diagnosis until we get to a proper diagnosis. Where CFS is limited is when we need to apply for things like insurance. I'm hoping to learn more from you guys that have succeeded. Also, my friends may not fully understand, but they also do not shame me. CFS is becoming more and more common here, and I do expect the cases will continue to grow for reasons I've said in previous comments.
So if you have ME, please don't be offended if I talk about CFS. Some of you may be fatigued, some of you may not. Can we just all bind together and help each other? Personally, I do think CFS is NOT a syndrome anyway. Again, there are times I need to abbreviate CFS for sake of conversation and communication, so please allow grace in that and let's focus on what we need to focus on - how to help one another. Fatigue does happen to be my most debilitating symptom though, in regards to my ability to provide for myself. This doesn't mean I don't have chronic neck issues and even migraines at times. But for me, the fatigue is daily, year after year.
The Bible says "The curse causeless shall not come." Some may interpret this differently, but how I take it is that there is a cause for everything. Our job is to find what that cause is. Just because ME/CFS/FM/MS are names of things the medical institutions have not agreed on a direct cause for, does not mean there are not direct causes - there are. Usually though, when causes are not figured out by a standard consensus in conventional medicine early on, it is usually because those that hold the control and power do NOT want us to know! And sometimes... they don't want us to know.... because they CAUSE it. I will try to share more soon what I think the causes of my CFS have been and I look forward to hearing yours and what you've learned!
Thank you so much for reading my 1st Health Rising post!
I suppose we can make this my introduction.
I have unfortunately stayed away from the ME/CFS community for awhile, not totally, intentionally trying to, but there are reasons I've been away, but I should not have to. And now that I've joined Health Rising, which I'm grateful to Cort for, I feel I need to address those issues upfront because they are hurting the community as a whole (not speaking of Health Rising specifically here, but of the entire ME/CFS community), and now that I'm trying again here, I don't want these things to harm ME/CFS or even FM or MS sufferers here.
1. I've been pushed out of a past CFS forum for telling medical truths that could save lives in the past. The moderators were literally deleting my posts before anyone could read them in response to their questions.
Please, folks, let's never censor medical information or research, regardless if it's hard for you to believe at first. Let people hear everything, and let the reader decide what's helpful or not, because - let's face it - most of us are NOT fully healed, most of our doctors are baffled - if we don't have 100% a final, full answer and proper diagnosis that leads to 100% healing, then we must be open to learning. In other words, I'm tired of the ignorance, albeit mostly sincere and innocent, of my own ME/CFS community.
So far, I am proud and thankful to report that my initial comments here have not been deleted - thank you, Health Rising! So we're looking good here so far at Health Rising. Let's keep it going. There is still a naivete and sincere ignorance still in the worldwide ME/CFS/FM community, and maybe even MS, that I will discuss in due time. Many wonder why our needs are not being addressed and taken seriously more. I hope they can in due time, but it would behoove everyone to finally realize that the medical system in Western nations has been corrupted, to include the CDC, FDA, and NIAID. Because we tend to use our own personal feelings to understand the world, we assume others care about humanity as much as we do. Please understand that those in power who stand to gain billions off our ignorance do NOT care, and would like to keep it this way and stay in power, and those leading Big Pharma do not care whether you heal or die, but they do care how much they can gain from your suffering. So if getting you on pharmaceuticals to only manage disease and not heal is something they can do, then they will do it over healing you. Truly, we could have easily cured these things 30-40 years ago or more. But many of the cures have been covered up and the doctors that used them have been attacked by the FDA or murdered by Big Pharma (the two are in bed with one another, and many just rotate in and out as the heads of each others' organizations, including the NIAID who is in cahoots w/their corruption and paid well). The list is now getting huge of the doctors that have been attacked. Eventually I will tell you what doctors have told me themselves, and many are scared for their lives and medical licenses right now in SoCal if they do too much for their patients to heal them of seemingly incurable diseases, or if they write them too many letters of support. Literally, all 4 clinics I go to in SoCal that are trying to help people are all under attack in small or large ways. Also, a potential cure has just been banned by the CA State Pharmacy Board. Somebody's payin' somebody some big bucks, if you know what I mean. But if they can keep banning cures here, then they know they will succeed in the rest of the USA, and maybe the world, with California being one of the most open and liberal regions when it comes to unconventional therapies in the Western world. I.e., the corruption at the top doesn't represent We, the People.
In other words, to understand what we're up against, dear friends, this is an all out war, and you must learn to become a Spiritual Warrior now, even as fatigued as we all are. It is too much to explain it all now, but give me some time and I will try. I do think a lot of it will be too hard for some to believe though, so let me give it to you little by little.
Please know I am NOT a conspiracy theorist and I hate the term, so don't write me off or accuse me of being one (that term was first coined by the C I A as part of a public psychological operation to shame those that were questioning JFK's murder, because, yes, our own leaders had him killed. He was doing too much for The People and not enough for the slave masters and their families who still run the Western world till this day. You can actually read about this in Freedom of Information Act requests.) The psyop was a success, and those telling the truth contrary to the lies the C I A spreads through their paid-off media that run every mainstream outlet today, are still shamed and unheard by those taught to write the truthtellers off as just "conspiracy theorists." Little by little I will try to teach you how deep the brainwashing goes over our people and medical institutions and the full reasons why, if you will allow me.
I am a TRUTH Warrior, and I will always come back and correct myself if I'm wrong. I spend more time in the Truth community than I do in the ME/CFS communities, but we need to change that. You need me as much as I need you, and God willing I heal one day, I'm going to fight for your right to be heard. I cannot take it to hear some of our sufferers have committed suicide. ;( I will not stand for the injustice and is why I'm coming to you here to wake you up to the bigger picture out of my love for you all. I hope you and Cort receive me. I am a force to be reckoned with and I know you all are too, and that is why darkness has tried so hard to silence us and take us out.
2. Please, let's stop arguing about the terms ME or CFS, as I've had ME people be offended by my use of CFS. We all know CFS is just an easy way to describe a set of symptoms. We all know we need to be seeking further diagnoses than both ME or CFS and many have found them. It's fine to relate to one term more than the other. Me, I personally relate to CFS more than ME, but I see markers and symptoms that crossover to ME, and I learn from ME sufferers. My doctors have never used the term ME though. I can relate to people with FM too though, as we all have some similar symptoms. If I didn't do what I do to heal, I think I would have FM or MS. Others have tried to argue about this with me elsewhere, totally ignoring more life-saving info I was trying to give them. Understand it is easier to write "CFS" than to spell out "Chronic Fatigue." Allow us to use it to even describe symptoms as our doctors do. It seems this offends those in other countries though, maybe like in Denmark where CFS patients have been shamed. It's fine if you don't think they are related in your own case, but in all cases I've looked at, the causes do look related, the difference seems to be where the virus travels, if there is a viral influence, and there does seem to be more and more as the honest doctors and researchers speak out. Nevertheless, I'm open to hearing different case studies if you want to share in your experience of ME and FM and MS or even CFS so we can all get to the bottom of it together.
We have to become our own experts, our own doctors, and our own advocates.
Where I'm from in SoCal, CFS is NOT to be shamed, nor do my doctors shame me for having it. They may not know how to fully help me, and they think it is mostly related to PTSD and insomnia, but it is not an embarrassing diagnosis until we get to a proper diagnosis. Where CFS is limited is when we need to apply for things like insurance. I'm hoping to learn more from you guys that have succeeded. Also, my friends may not fully understand, but they also do not shame me. CFS is becoming more and more common here, and I do expect the cases will continue to grow for reasons I've said in previous comments.
So if you have ME, please don't be offended if I talk about CFS. Some of you may be fatigued, some of you may not. Can we just all bind together and help each other? Personally, I do think CFS is NOT a syndrome anyway. Again, there are times I need to abbreviate CFS for sake of conversation and communication, so please allow grace in that and let's focus on what we need to focus on - how to help one another. Fatigue does happen to be my most debilitating symptom though, in regards to my ability to provide for myself. This doesn't mean I don't have chronic neck issues and even migraines at times. But for me, the fatigue is daily, year after year.
The Bible says "The curse causeless shall not come." Some may interpret this differently, but how I take it is that there is a cause for everything. Our job is to find what that cause is. Just because ME/CFS/FM/MS are names of things the medical institutions have not agreed on a direct cause for, does not mean there are not direct causes - there are. Usually though, when causes are not figured out by a standard consensus in conventional medicine early on, it is usually because those that hold the control and power do NOT want us to know! And sometimes... they don't want us to know.... because they CAUSE it. I will try to share more soon what I think the causes of my CFS have been and I look forward to hearing yours and what you've learned!
Thank you so much for reading my 1st Health Rising post!
